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McFarland, Bridget; Bryant, Lia; Wark, Stuart; Morales-Boyce, Tyson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…
Descriptors: Foreign Countries, Intellectual Disability, Interviews, Adjustment (to Environment)
Henshaw, Marie; Spivak, Benjamin; Thomas, Stuart D. M. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Several jurisdictions mandate the presence of an independent support person during police interviews with vulnerable people. The current study investigated police officers' experiences and perceptions of these volunteers during interviews with people with intellectual disability(ies) (ID). Methods: The sample comprised 229 police…
Descriptors: Interviews, Intellectual Disability, Police, Law Enforcement
Wilson, Nathan J.; Jaques, Hayden; Johnson, Amanda; Brotherton, Michelle L. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disability often have few friends and experience social exclusion. Recognising this gap, supported social groups with the aim of inclusion and interdependence were created by a supported employment provider. Methods: Interviews were undertaken with 10 adults with intellectual disability exploring their lived…
Descriptors: Intellectual Disability, Adults, Social Isolation, Social Support Groups
Anderson, Sian; Bigby, Christine – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Stigma attached to having an intellectual disability has negative implications for the social identities and inclusion of people with intellectual disability. Aim: The study explored the effects of membership of independent self-advocacy groups on the social identity of people with intellectual disability. Method: Using a…
Descriptors: Social Bias, Self Advocacy, Intellectual Disability, Grounded Theory
Grindrod, Andrea; Rumbold, Bruce – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…
Descriptors: Foreign Countries, Death, Medical Services, Intellectual Disability
Koch, Cecelia; Mayes, Rachel – Journal of Applied Research in Intellectual Disabilities, 2012
Background: The aim of this study was to explore parents' experiences and strategies used when meeting the needs of all their children, including an adolescent with disabilities. Materials and methods: A qualitative study design was employed. The study was conducted in two phases. (i) Secondary analysis of ecocultural interviews with 12…
Descriptors: Grounded Theory, Siblings, Parent Attitudes, Mental Retardation
Bigby, Christine; Frawley, Patsie; Ramcharan, Paul – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Funding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches. Method: This study proposes one…
Descriptors: Participatory Research, Inclusion, Mental Retardation, Self Advocacy
Rodger, Sylvia; O'Keefe, Amy; Cook, Madonna; Jones, Judy – Journal of Applied Research in Intellectual Disabilities, 2012
Background: This qualitative study describes parents' and service providers' experiences in using the Family Goal Setting Tool (FGST). This article looks specifically at the tool's perceived clinical utility during annual, collaborative goal setting. Methods: Participants included eight parents and ten service providers involved in a Family and…
Descriptors: Empowerment, Early Intervention, Focus Groups, Goal Orientation
Strnadova, Iva; Evans, David – Journal of Applied Research in Intellectual Disabilities, 2012
Background: Quality of life for people with intellectual disabilities has been reported in the research literature across differing demographics. There has been, however, little research that has examined in-depth the experiences of women with intellectual disabilities aged 40 years or older. Materials and methods: Fifty-five women from Sydney,…
Descriptors: Grounded Theory, Females, Mental Retardation, Quality of Life
Wiese, Michele; Stancliffe, Roger J.; Balandin, Susan; Howarth, Glennys; Dew, Angela – Journal of Applied Research in Intellectual Disabilities, 2012
Background: The aim of this study was to explore the current status of end-of-life care and dying of people with intellectual disability based on the experiences of staff in community living services. Materials and Methods: Focus groups and individual interviews were conducted, guided by grounded theory methodology. Results: The current status of…
Descriptors: Health Services, Caring, Independent Living, Ethics
McDermott, Shannon; Edwards, Robyn – Journal of Applied Research in Intellectual Disabilities, 2012
Background: Promoting self-determination is recognized to be an essential element of disability service provision; however, the extent to which older people with intellectual disability working in supported employment are enabled to make intentional decisions about retirement is not well understood. Methods: This research explored the views of…
Descriptors: Supported Employment, Retirement, Mental Retardation, Foreign Countries
Clement, Tim; Bigby, Christine – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Adults with severe challenging behaviour can achieve good "quality of life" outcomes in small supported accommodation services. Yet, the research indicates that they typically experience poorer outcomes than other adults with intellectual disability. This raises questions about the degree to which research has informed…
Descriptors: Program Design, Program Development, Mental Retardation, Quality of Life