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Direct linkPetry, K.; Maes, B.; Vlaskamp, C. – Journal of Intellectual Disability Research, 2007
Background: In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects of support of people with profound multiple disabilities (PMD). In the present study, a panel of experts assessed the content and the structure of this item pool in order to enhance its validity and usefulness. Method: A…
Descriptors: Foreign Countries, Questionnaires, Multiple Disabilities, Quality of Life
Hogg, James; Juhlberg, K.; Lambe, L. – Journal of Intellectual Disability Research, 2007
Background: One hundred and forty-two children and adults with profound intellectual and multiple disabilities were identified in 1993 in a single Scottish region on whom detailed information was collected via a postal questionnaire survey. Methods: They were followed up in 2003. The time spanned represented a period of significant policy change…
Descriptors: Multiple Disabilities, Nursing Homes, Death, Adolescents
van den Broek, Ellen G. C.; Janssen, C. G. C.; van Ramshorst, T.; Deen, L. – Journal of Intellectual Disability Research, 2006
Background: The prevalence of visual impairments in people with severe and profound multiple disabilities (SPMD) is the subject of considerable debate and is difficult to assess. Methods: In a typical Dutch care organization, all clients with SPMD (n = 76) participated in the study and specific instruments adapted to these clients (requiring a…
Descriptors: Visual Impairments, Incidence, Multiple Disabilities, Visual Acuity
