Background: It is widely accepted that family caregivers are central to the future of cancer care and the impetus is to understand how best to support and empower them. Aims: This study explored the role of the relationship between the caregiver and the child, the level of perceived support, and the self-compassion of the caregiver, on distress…

Literature on the relationship between childhood cancer and post-traumatic stress symptoms (PTSS) is mixed. Research has shown that other factors (i.e., family problems, treatment intensity, stressful life events) impact this relationship. Researchers have examined the relationship between post-traumatic growth and experiencing cancer. We examined…

A review of existing stress and coping models and an analysis of the distress caused by childhood cancer suggest that a broader conceptualization of coping that includes "pleasure management" is needed. Presently, successful coping is identified as the employment of strategies which allow the individual to adapt to stress. Traditional…

Evaluated the effects of increased methodological rigor on the validity of the Observation Scale of Behavioral Distress and on findings concerning whether children habituate to painful procedures. Data were scored with and without refinements. Results indicated that children do habituate but that refinements had little effect on validity. (BH)

Obtained reports of coping and goals from 33 children being treated for leukemia. Coping strategies were classified as primary control coping (attempts to alter objective conditions), secondary control coping (attempts to adjust to objective conditions), or relinquished control (no attempt to cope). Secondary control coping was positively…

Evaluated efficacy of cognitive-behavioral intervention package and low-risk pharmacologic intervention (oral Valium) as compared with minimal treatment-attention control condition, in reducing children leukemia patients' distress during bone marrow aspirations. The cognitive-behavioral therapy reduced behavioral distress, pain ratings and pulse…

The amount of anxiety suggested the need for clinical intervention to reduce procedure-related distress in children with cancer. Younger children exhibited consistently higher levels of distress than older children and displayed a greater variety of anxious responses over a longer time span. (Author/BEF)

Data acquired in personal interviews administered to physicians and nurses who participated in the first year of the Home Care for the Child with Cancer project provided descriptions of individual sources of social support. The results reveal a range of supportive mechanisms and networks within varied institutional contexts. (Author)

This paper reviews research literature pertaining to the pain and anxiety associated with pediatric cancer and the use of hypnosis as an adjunct treatment. It is noted that pain and anxiety are most often associated with the procedural treatment of cancer, and that the literature suggests that both pain and anxiety are multi-faceted constructs.…

The family of a child with cancer is faced with special adjustment problems that must be confronted, including guilt, anger, and a desire to retain a sense of normalcy. (MB)

This article poses three questions: What do childhood cancer survivors worry about? What characteristics prompt some to worry more and others less? What effect do worries have on survivors' self-image and life outlooks? Data demonstrated significant relationships among worries, "objective" factors like physical after-effects or relapse,…

Presented at the National Conference of the Forum for Death Education and Counselling, Washington, 1978, this paper explores the effects of childhood malignancy on family dynamics. Problem areas include marital difficulties, forgotten siblings, and the necessity of alternating between a "sick" and "well" world. Constructive approaches are…

Medical considerations about testing and possible psychological consequences for the child and family of genetically testing children are discussed. Risks include distress from ambivalent feelings toward testing, preoccupation with disease-related signs, changes in family interactions, the burdening prospect of a future disease, and medicalization…

This paper reviews the research on how siblings respond to another sibling who has survived childhood cancer. The paper examines the siblings' ability to cope, adjust, and adapt to this stressor. Relevant interventions are also discussed. The research indicates that although siblings may experience heightened emotional and behavioral problems,…