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Min Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Lee, Chung Eun; Hagiwara, Mayumi; Chiu, Chun-Yu; Takishima, Mayu – Journal of Applied Research in Intellectual Disabilities, 2023
Background: As individuals with intellectual and developmental disabilities age, their siblings are more likely to assume caregiving responsibilities. However, little is known about experiences of East Asian siblings with respect to their caregiving and future-planning within their own country, as well as other East Asian countries. Methods: Using…
Descriptors: Caregivers, Foreign Countries, Siblings, Intellectual Disability
Lee, Chung eun; Kim, Kyung Mee – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Future planning has emerged as a global issue for families of individuals with intellectual and developmental disabilities due to the longer lives and limited long-term services and supports in the adult disability system. While it has received greater attention, most future planning studies only included parents of individuals with…
Descriptors: Long Range Planning, Intellectual Disability, Developmental Disabilities, Siblings
Koch, Cecelia; Mayes, Rachel – Journal of Applied Research in Intellectual Disabilities, 2012
Background: The aim of this study was to explore parents' experiences and strategies used when meeting the needs of all their children, including an adolescent with disabilities. Materials and methods: A qualitative study design was employed. The study was conducted in two phases. (i) Secondary analysis of ecocultural interviews with 12…
Descriptors: Grounded Theory, Siblings, Parent Attitudes, Mental Retardation
Chadwick, Darren D.; Mannan, Hasheem; Garcia Iriarte, Edurne; McConkey, Roy; O'Brien, Patricia; Finlay, Frieda; Lawlor, Anne; Harrington, Gerry – Journal of Applied Research in Intellectual Disabilities, 2013
Background: Families in Ireland remain the main providers of support for people with Intellectual disabilities, and the aim of this study was to map their life experiences whilst involving their family members as co-researchers. Materials and Method: This qualitative, participatory study involved 10 focus groups attended by 70 parents and siblings…
Descriptors: Foreign Countries, Mental Retardation, Caregivers, Family Role
McConkey, Roy; Gent, Clare; Scowcroft, Emma – Journal of Applied Research in Intellectual Disabilities, 2013
Background: Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioning and effectiveness of such services. Methods: In all, 17 children were selected…
Descriptors: Behavior Disorders, Child Behavior, Disabilities, Family Programs
Lundeby, Hege; Tossebro, Jan – Journal of Applied Research in Intellectual Disabilities, 2008
Background: The idea that raising a child with disabilities has a negative impact on the parents' relationship is still widely accepted despite contradictory research findings. This article addresses the impact of raising a child with disabilities on family structure in the present Norwegian context. Method: Family demographics were collected at…
Descriptors: Siblings, Multiple Disabilities, Family Structure, Parents