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Discovering the Current 'State of Play' in Pain Recognition and Assessment for People with Profound Intellectual Disabilities by Nurses: An Appreciative Inquiry Approach
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Maeve Goodall; Kate Irving; Mary Nevin – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Pain recognition and assessment in individuals with profound intellectual disabilities are challenging. Exploring effective methods of addressing this is essential. This study aims to discover current nursing practice in this area of care as the first of a four-phased appreciative inquiry study, to inform further research and practice.…
Descriptors: Pain, Severe Intellectual Disability, Nurses, Role
Tacit Knowledge in Dyads of Persons with Profound Intellectual and Multiple Disabilities and Their Caregivers: An Interpretative Literature Study
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Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
Meaningful Moments of Interaction with People with Profound Intellectual Disabilities: Reflections from Direct Support Staff
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Penninga, Wieneke; Nijs, Sara L. P.; Bakel, Hedwig J. A.; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background; High-quality, affective relationships are built on meaningful moments of interaction, which are challenging for support staff to establish with people with profound intellectual disabilities. Therefore, we explored what makes a moment of interaction meaningful to support staff and what circumstances facilitate meaningful moments of…
Descriptors: Interaction, Interpersonal Relationship, Caregivers, Employees
Supporting End of Life Decision Making: Case Studies of Relational Closeness in Supported Decision Making for People with Severe or Profound Intellectual Disability
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Watson, Joanne; Wilson, Erin; Hagiliassis, Nick – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions.…
Descriptors: Decision Making, Severe Intellectual Disability, Participative Decision Making, Case Studies
Joint Attention Behaviours in People with Profound Intellectual and Multiple Disabilities: The Influence of the Context
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Neerinckx, Heleen; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2016
Background: In spite of the profound cognitive and physical problems, people with profound intellectual and multiple disabilities (PIMD) are able to develop joint attention behaviours (JAB) and benefit from positive interactions. Aims: To investigate which context factors influence the JAB of people with PIMD. Method: Based on video recordings of…
Descriptors: Familiarity, Context Effect, Multiple Disabilities, Severe Intellectual Disability
Attuning: A Communication Process between People with Severe and Profound Intellectual Disability and Their Interaction Partners
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Griffiths, Colin; Smith, Martine – Journal of Applied Research in Intellectual Disabilities, 2016
Background: People with severe and profound intellectual disability typically demonstrate a limited ability to communicate effectively. Most of their communications are non-verbal, often idiosyncratic and ambiguous. This article aims to identify the process that regulates communications of this group of people with others and to describe the…
Descriptors: Severe Intellectual Disability, Interpersonal Relationship, Interpersonal Communication, Communication Problems