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Providing End-Of-Life Care in Disability Community Living Services: An Organizational Capacity-Building Model Using a Public Health Approach
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Grindrod, Andrea; Rumbold, Bruce – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…
Descriptors: Foreign Countries, Death, Medical Services, Intellectual Disability
Perspectives of Family Members of People with an Intellectual Disability to a Major Reconfiguration of Living Arrangements for People with Intellectual Disability in Ireland
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O'Doherty, Siobhain; Linehan, Christine; Tatlow-Golden, Mimi; Craig, Sarah; Kerr, Mike; Lynch, Christy; Staines, Anthony – Journal of Intellectual Disabilities, 2016
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalized model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members' preference for particular types of living arrangements were…
Descriptors: Intellectual Disability, Foreign Countries, Focus Groups, Social Support Groups
Identifying Children with Intellectual Disabilities in the Tribal Population of Barwani District in State of Madhya Pradesh, India
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Lakhan, Ram; Mawson, Anthony R. – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Low-and middle-income countries (LAMI) lack an integrated and systematic approach to identify people with intellectual disabilities. Screening surveys are considered resource-intensive; therefore, alternative approaches are needed. This study attempted to identify children up to age 18 years with intellectual disabilities through a…
Descriptors: Foreign Countries, Disability Identification, Intellectual Disability, Tribes
Research Active Programme: A Pilot Inclusive Research Curriculum in Higher Education
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Salmon, Nancy; García Iriarte, Edurne; Burns, Emma Q. – International Journal of Research & Method in Education, 2017
Participation of people with disabilities in producing and using research is critical for monitoring the implementation of the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The Research Active Programme (RAP) is a module designed to build research capacity of students with intellectual disabilities. RAP was…
Descriptors: Foreign Countries, Intellectual Disability, Capacity Building, Research Skills
The Health Role of Local Area Coordinators in Scotland: A Mixed Methods Study
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Brown, Michael; Karatzias, Thanos; O'Leary, Lisa – Journal of Intellectual Disabilities, 2013
The study set out to explore whether local area coordinators (LACs) and their managers view the health role of LACs as an essential component of their work and identify the health-related activities undertaken by LACs in Scotland. A mixed methods cross-sectional phenomenological study involving local authority service managers (n = 25) and LACs (n…
Descriptors: Foreign Countries, Mixed Methods Research, Coordinators, Administrators
Understanding Support Workers' Competence Development in Working with Parents with Intellectual Disability
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Mc Hugh, Elaine; Starke, Mikaela – Journal of Intellectual Disabilities, 2015
Training for support workers who work with parents with intellectual disability can be aided by understanding how they perceive the training process and their competence development. This study explored the perceptions of competence development and the training process in Swedish support workers trained in the evidence-informed programme…
Descriptors: Parents, Intellectual Disability, Training, Competence
Mixed Method Approaches in Open-Ended, Qualitative, Exploratory Research Involving People with Intellectual Disabilities: A Comparative Methods Study
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Ottmann, Goetz; Crosbie, Jenny – Journal of Intellectual Disabilities, 2013
People with intellectual disabilities and their families are increasingly being asked to provide input into the services they receive. Under the aegis of the United Nation Convention of the Rights of Persons with Disabilities, support plans crucially depend on a participant's articulation of his or her preferences and life goals. Yet, research…
Descriptors: Mixed Methods Research, Intellectual Disability, Comparative Analysis, Research Methodology