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Motor Competence in Children with CHARGE Syndrome
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Perreault, Melanie; Haibach-Beach, Pamela; Lieberman, Lauren; Foster, Elizabeth – Research and Practice for Persons with Severe Disabilities, 2021
Children with Coloboma, Heart defects, Atresia choanae, Restricted growth, Genital hypoplasia, and Ear abnormalities (CHARGE) syndrome have many sensory impairments that can cause delays in motor development impacting physical activity, health, and quality of life. However, only one limited study has investigated motor competence in children with…
Descriptors: Genetic Disorders, Psychomotor Skills, Physical Disabilities, Age Differences
Parents' Perceptions of Constraints Impacting the Development of Walking in Children with CHARGE Syndrome
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Foster, Elizabeth Ann; Silliman-French, Lisa; Grenier, Michelle – Research and Practice for Persons with Severe Disabilities, 2020
This study examined parents' perceptions of constraints that impact the attainment of independent walking in children with CHARGE syndrome. This syndrome is a multifaceted syndrome including a degree of vision and hearing loss at birth. The Dynamic Systems Theory (DST) was used as an ecological lens to provide insight into the complexity of issues…
Descriptors: Parent Attitudes, Physical Activities, Motor Development, Deaf Blind