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Madison M. Walsh; Kaylyn Van Deusen; Miranda E. Pinks; Benedetta Ceci; Susan Hepburn; Nathanial R. Riggs; Francesca Pulina; Chiara Marcolin; Sara Onnivello; Sara Colaianni; Bethany Gray; Lisa A. Daunhauer; Silvia Lanfranchi; Deborah J. Fidler – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Parent-mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to…
Descriptors: Parent Attitudes, Intervention, Young Children, Down Syndrome
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
Cwirynkalo, Katarzyna; Parchomiuk, Monika – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Many fathers with intellectual disabilities experience some difficulties in fulfilling their parenting role due external factors. The quality of their parenting depends on various factors, including the availability and adequacy of support. The aim of this study was to understand the lived experiences associated with social support of…
Descriptors: Fathers, Parents with Disabilities, Intellectual Disability, Experience
McGarty, Arlene M.; Westrop, Sophie C.; Melville, Craig A. – Journal of Applied Research in Intellectual Disabilities, 2021
Introduction: Children and adolescents with intellectual disabilities participate in low levels of physical activity and have a greater reliance on their parents to provide activity opportunities. This study explored parents' experiences of promoting physical activity for their child with intellectual disabilities. Methods: Semi-structured…
Descriptors: Parent Attitudes, Parent Participation, Physical Activities, Intellectual Disability
Oulton, Kate; Sell, Debbie; Gibson, Faith – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Limited evidence exists of what hospital care is like for parents of children and young people (CYP) with intellectual disability (ID). Effective collaboration is often missing, with parents lacking trust in professionals, with feelings of being expected to care and consequently unable to leave their child. This paper focuses on what…
Descriptors: Hospitalized Children, Intellectual Disability, Parent Participation, Parent Attitudes
Ridding, Anna; Williams, James – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Historically, research exploring the impact of having a child with an Intellectual Disability (ID), has focussed exclusively on mothers. The present study aimed to investigate fathers' experiences of parenting a child with Down's syndrome (DS), their contributions, influences on family functioning and inclusion in their child's support…
Descriptors: Child Rearing, Down Syndrome, Fathers, Adjustment (to Environment)
Mas, Joana M.; Cañadas, Marga; Balcells-Balcells, Anna; Giné, Climent; Serrano, Ana M.; Dunst, Carl J. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Early childhood intervention (ECI) centres in Spain recently initiated a process of change towards the adoption of family-centred practices (FCPs). Knowledge about the extent to which practitioners' use FCPs is needed. The psychometric properties of the Spanish version of the FCPs scale were examined. Method: A convenience sample of…
Descriptors: Spanish, Self Efficacy, Foreign Countries, Intervention
Shave, Kassi; Lashewicz, Bonnie – Journal of Applied Research in Intellectual Disabilities, 2016
Introduction: Fathers are increasingly involved in caring for children, and involvement by fathers of children with ASD is distinctly impacted by added demands of their child's diagnosis. Yet supports for families of children with ASD are not tailored to needs of fathers. We use an ecological framework to examine how fathers' needs are influenced…
Descriptors: Autism, Pervasive Developmental Disorders, Fathers, Semi Structured Interviews
Keenan, Mickey; Dillenburger, Karola; Doherty, Alvin; Byrne, Tony; Gallagher, Stephen – Journal of Applied Research in Intellectual Disabilities, 2010
Background: For families of children diagnosed with autism spectrum disorder (ASD) getting a diagnosis is a traumatic experience on which future care and education plans for the child depend. In this paper parental experiences of diagnosis and forward planning for children with ASD are reported. Method: This paper is part of a large…
Descriptors: Intervention, Autism, Disability Identification, Parents
Wade, Catherine M.; Mildon, Robyn L.; Matthews, Jan M. – Journal of Applied Research in Intellectual Disabilities, 2007
Background: Studies support the use of family-centred practices in service delivery to families where a parent has an intellectual disability. This paper examines the importance of such practices to parents. Materials and Methods: Interview responses from 32 parents with intellectual disability were coded by two independent raters as reflecting…
Descriptors: Mental Retardation, Parents with Disabilities, Delivery Systems, Social Support Groups
Weiss, Jonathan A.; Diamond, Terry – Journal of Applied Research in Intellectual Disabilities, 2005
Background: It is important to determine how programmes serving the individual with intellectual disability may also help to reduce stress in parents of adult children with intellectual disabilities. The aim of this study was to test whether parents who frequently watch their children at Special Olympics (SO) competitions report less stress than…
Descriptors: Mothers, Mental Retardation, Adults, Stress Variables