NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 6 results Save | Export
Reliable Assessment of Pain Behaviour in Adults with Profound Intellectual and Multiple Disabilities: The Development of an Instruction Protocol
Peer reviewed Peer reviewed
Direct linkDirect link
Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…
Descriptors: Test Reliability, Pain, Behavior, Adults
Transition to Adulthood of Adolescents with Profound Intellectual and Multiple Disabilities: Content Validation of the SGU-PIMD to Support Families
Peer reviewed Peer reviewed
Direct linkDirect link
Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Construct Validity of the Actiwatch-2 for Assessing Movement in People with Profound Intellectual and Multiple Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
van Alphen, Helena J. M.; Waninge, Aly; Minnaert, Alexander E. M. G.; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Valid measures to assess either small or assisted performed movements of people with profound intellectual and multiple disabilities (PIMD) are required. We analysed the construct validity of the Actiwatch-2 to assess movement in people with PIMD. Method: Twenty-two persons with PIMD were video recorded while wearing an Actiwatch-2. We…
Descriptors: Construct Validity, Measurement Equipment, Motion, Severe Intellectual Disability
Dementia in People with Severe or Profound Intellectual (and Multiple) Disabilities: Focus Group Research into Relevance, Symptoms and Training Needs
Peer reviewed Peer reviewed
Direct linkDirect link
Dekker, Alain D.; Wissing, Maureen B. G.; Ulgiati, Aurora M.; Bijl, Bas; van Gool, Gaby; Groen, Marieke R.; Grootendorst, Esther S.; van der Wal, Ina A.; Hobbelen, Johannes S. M.; De Deyn, Peter P.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Differentiating dementia from baseline level of functioning is difficult among people with severe/profound intellectual (and multiple) disabilities. Moreover, studies on observable dementia symptoms are scarce. This study examined (a) the relevance of dementia diagnosis, (b) observable symptoms and (c) training/information needs.…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Clinical Diagnosis
Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
Wissing, Maureen B. G.; Dijkstra, Roos; van der Wal, Ina A.; Grootendorst, Esther S.; Hobbelen, Johannes S.M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Screening Tests
Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms
Peer reviewed Peer reviewed
Direct linkDirect link
Wissing, Maureen B. G.; Fokkens, Andrea S.; Dijkstra, Roos; Hobbelen, Johannes S. M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. Methods: Care professionals and family…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Symptoms (Individual Disorders)