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Direct linkOverwijk, Annelies; van der Putten, Annette A. J.; van der Schans, Cees P.; Willems, Mariël; Hilgenkamp, Thessa I. M.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people with intellectual disabilities. The aim of this study is to determine whether and which BCTs are used by direct support professionals (DSPs) for supporting healthy lifestyle behaviour of people with moderate to profound intellectual…
Descriptors: Behavior Modification, Behavior Change, Health Promotion, Moderate Intellectual Disability
Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…
Descriptors: Test Reliability, Pain, Behavior, Adults
Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Lahaije, Siméon T. A.; Luijkx, Jorien; Waninge, Aly; van der Putten, Annette A. J. – Research and Practice for Persons with Severe Disabilities, 2023
In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though their well-being may be affected by the…
Descriptors: Well Being, Family Involvement, Students with Disabilities, Intellectual Disability
Wissing, Maureen B. G.; Ulgiati, Aurora M.; Hobbelen, Johannes S. M.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Dementia is increasingly prevalent in people with severe/profound intellectual disabilities. However, early detection and diagnosis of dementia is complex in this population. This study aimed to identify observable dementia symptoms in adults with severe/profound intellectual disabilities in available literature. Method: A systematic…
Descriptors: Dementia, Severe Intellectual Disability, Disability Identification, Identification
Willems, Mariël; de Jong, Johan; Overwijk, Annelies; Hilgenkamp, Thessa I. M.; van der Schans, Cees P.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Professional caregivers are important in the daily support of lifestyle change for adults with mild intellectual disabilities; however, little is known about which behaviour change techniques (BCTs) are actually used. This study aims to gain insight in their use for lifestyle behaviour change using video observations. Methods:…
Descriptors: Caregivers, Allied Health Personnel, Adults, Mild Intellectual Disability
van Alphen, Helena J. M.; Waninge, Aly; Minnaert, Alexander E. M. G.; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Valid measures to assess either small or assisted performed movements of people with profound intellectual and multiple disabilities (PIMD) are required. We analysed the construct validity of the Actiwatch-2 to assess movement in people with PIMD. Method: Twenty-two persons with PIMD were video recorded while wearing an Actiwatch-2. We…
Descriptors: Construct Validity, Measurement Equipment, Motion, Severe Intellectual Disability
Overwijk, Annelies; Hilgenkamp, Thessa I. M.; van der Schans, Cees P.; van der Putten, Annette A. J.; Waninge, Aly – Intellectual and Developmental Disabilities, 2022
Individuals with intellectual disability (ID) need support from direct support professionals (DSPs) to engage in a healthy lifestyle. However, literature shows DSPs feel insufficiently equipped to support a healthy lifestyle. Therefore, the aim of this study is to develop a theory-based program for DSPs to support physical activity and healthy…
Descriptors: Foreign Countries, Intellectual Disability, Health Promotion, Life Style
Hanzen, Gineke; Waninge, Aly; van Nispen, Ruth M. A.; Vlaskamp, Carla; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: We investigated the effects of the "Care for Participation+" (CFP+) intervention on direct support professionals' (DSPs') attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled trial with two control groups…
Descriptors: Intervention, Allied Health Personnel, Caregiver Attitudes, Attitudes toward Disabilities
Dekker, Alain D.; Wissing, Maureen B. G.; Ulgiati, Aurora M.; Bijl, Bas; van Gool, Gaby; Groen, Marieke R.; Grootendorst, Esther S.; van der Wal, Ina A.; Hobbelen, Johannes S. M.; De Deyn, Peter P.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Differentiating dementia from baseline level of functioning is difficult among people with severe/profound intellectual (and multiple) disabilities. Moreover, studies on observable dementia symptoms are scarce. This study examined (a) the relevance of dementia diagnosis, (b) observable symptoms and (c) training/information needs.…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Clinical Diagnosis
Dijkhuizen, Annemarie; Douma, Rob K.; Krijnen, Wim P.; van der Schans, Cees P.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2018
Background: A feasible and reliable instrument to measure strength in persons with severe intellectual and visual disabilities (SIVD) is lacking. The aim of our study was to determine feasibility, learning period and reliability of three strength tests. Methods: Twenty-nine participants with SIVD performed the Minimum Sit-to-Stand Height test…
Descriptors: Intellectual Disability, Visual Impairments, Muscular Strength, Reliability
Willems, Mariël; Waninge, Aly; Hilgenkamp, Thessa I. M.; van Empelen, Pepijn; Krijnen, Wim P.; van der Schans, Cees P.; Melville, Craig A. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Promotion of a healthy lifestyle for people with intellectual disabilities is important; however, the effectiveness of lifestyle change interventions is unclear. Aims: This research will examine the effectiveness of lifestyle change interventions for people with intellectual disabilities. Methods and Procedures: Randomized controlled…
Descriptors: Intellectual Disability, Life Style, Intervention, Health Promotion
Dijkhuizen, Annemarie; Waninge, Aly; Hermans, Seph; van der Schans, Cees P.; Krijnen, Wim P. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Knowledge concerning the feasibility and effects of progressive resistance training (PRT) for persons with intellectual disabilities and visual impairment who are categorized in Gross Motor Function Classification System (GMFCS) Level 1 is limited. The aim of our study was to evaluate feasibility and effect of PRT on participants'…
Descriptors: Intellectual Disability, Visual Impairments, Feasibility Studies, Program Effectiveness
Wissing, Maureen B. G.; Dijkstra, Roos; van der Wal, Ina A.; Grootendorst, Esther S.; Hobbelen, Johannes S.M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Screening Tests
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