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Peer reviewed
Direct linkE. Zhang; Makenna Snyder; Wafaa Alduraidi; Ezra Kaiser; Spencer Hunley; Lacy Wright; Rebecca Swinburne Romine; Eve-Lynn Nelson; Nancy Cheak-Zamora – Autism: The International Journal of Research and Practice, 2025
Autistic adolescents and young adults in rural areas often experience more unmet medical needs than their urban peers, particularly during the health care transition, the process of moving from pediatric to adult health care. This study aimed to understand the health care transition experiences of autistic adolescents and young adults (14-25 years…
Descriptors: Autism Spectrum Disorders, Adolescents, Young Adults, Rural Urban Differences
Yona Lunsky; Robert Balogh; Hannah Chung; Anna Durbin; Meng-Chuan Lai; Ami Tint; Jonathan Weiss; Barry Isaacs; Elizabeth Lin – Autism: The International Journal of Research and Practice, 2025
Recognizing higher rates of co-occurring health conditions in autistic adults and the frequent use of hospital-based health care services, this study compared rates of repeat emergency visits, repeat hospitalizations, and delayed discharges in autistic adults to other adults with and without developmental disabilities matched for age and sex,…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Comorbidity
Lovisa Alehagen; Sven Bölte; Melissa H Black – Autism: The International Journal of Research and Practice, 2025
The International Classification of Functioning, Disability, and Health is a biopsychosocial framework of health-related functioning designed to provide a unifying system for health care, social services, education, and policy sectors. Since its publication in 2001, the International Classification of Functioning has been used to guide clinical…
Descriptors: Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Classification, Functional Behavioral Assessment
Fernanda A Castellón; Ana Dueñas; Paul Luelmo – Autism: The International Journal of Research and Practice, 2025
The purpose of this study was to explore and document the migratory motivations and reasonings of Mexican mothers of autistic children pursuing autism services in the United States. The study was guided by the overarching research question, "What are the experiences of mothers living in the U.S./Mexico border while seeking services for their…
Descriptors: Resilience (Psychology), Mother Attitudes, Autism Spectrum Disorders, Parent Child Relationship
Hassan Mansour; Amy Gillions; Jude Brown; Anoushka Pattenden; Susan Hartley; Sarifa Patel; Stephanie James; Martin Styles; Will Mandy; Joshua Stott; Elizabeth O'Nions – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences of autistic older adults. Semi-structured interviews were conducted with 19 autistic adults…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Older Adults, Health Services
Kristy A. Anderson; Melissa Radey; Lauren Bishop; Nahime G. Aguirre Mtanous; Jamie Koenig; Lindsay Shea – Autism: The International Journal of Research and Practice, 2025
This exploratory study used the Future of Families and Child Wellbeing Study (FFCWS) to compare the financial well-being of families of adolescents with and without autism. Recognizing the gap in autism research, which predominantly measures financial well-being through household income, this study employed a multidimensional approach, including…
Descriptors: Autism Spectrum Disorders, Adolescents, Socioeconomic Status, Family Income
Christina Nicolaidis; Mirah Scharer; Dora M. Raymaker; Joseph Vera; Todd Edwards; Ian Moura; Mary Baker-Ericzén; Joelle Maslak; Liu-Qin Yang; Rachel Kripke-Ludwig; Steven K. Kapp; Andrea Joyce; Anna Wallington; Academic Autism Spectrum Partnership in Research and Education (AASPIRE) Outcomes Project Team – Autism: The International Journal of Research and Practice, 2025
People are increasingly recognizing the need for service interventions to improve the lives of autistic adults. However, less is known about how to best evaluate such services. We aimed to identify (1) which self-reported outcomes are most important to measure when evaluating the effectiveness of services for autistic adults and (2) what survey…
Descriptors: Autism Spectrum Disorders, Adults, Program Evaluation, Intervention
Laurie K. McLay; Philip J. Schluter; John Williams; Francesca Anns; Ruth Monk; Joanne Dacombe; Gabrielle Hogg; Jessica Tupou; Troy Ruhe; Taylor Scott; Emma Woodford; Hiran Thabrew; Nicholas Bowden – Autism: The International Journal of Research and Practice, 2025
Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Access to Health Care, Mental Health
Rhylee Sulek; Chris Edwards; Ruth Monk; Lee Patrick; Sarah Pillar; Andrew J. O. Whitehouse; Hannah Waddington – Autism: The International Journal of Research and Practice, 2025
Autistic advocates emphasise the need for neurodiversity-affirming and strengths-based approaches to support services; however, little is known about broader community perspectives regarding the appropriateness of offering early support services to autistic children. This co-designed mixed-methods study employed surveys to gather insights from 253…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Children, Adults
Carly Moser; Leann Smith DaWalt; Meghan M. Burke; Julie Lounds Taylor – Autism: The International Journal of Research and Practice, 2025
Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic individuals without intellectual disability or which characteristics are associated with life…
Descriptors: Life Satisfaction, Autism Spectrum Disorders, Intellectual Disability, Youth
Paulina Buffle; Thalia Cavadini; María de Lourdes Ortega; Cristina Armijos; Patricia Soto; Edouard Gentaz; Laura Crane – Autism: The International Journal of Research and Practice, 2025
There has been limited research on families of autistic children in Ecuador, especially in relation to their experiences of accessing a diagnosis and associated support. In this study, we surveyed 767 families about their diagnostic and post-diagnostic journeys. Of these, 651 families had children who had received a formal autism diagnosis. In…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Clinical Diagnosis, Family Attitudes
Dominique Solia; Loai Albarqouni; Paulina Stehlik; Antonia Conroy; Rae Thomas – Autism: The International Journal of Research and Practice, 2025
Some parents experience concerns relating to their child's development and seek clinical assessments for their child's behaviour. We sought to understand the concerns that led parents to seek a general clinical assessment where some children were diagnosed with autism spectrum disorder. We conducted a systematic review to identify the types of…
Descriptors: Parents, Parent Attitudes, Autism Spectrum Disorders, Clinical Diagnosis
Janeth Aleman-Tovar; Meghan M. Burke; Edwin Monárrez; Nicole Espinosa Zaldivar – Autism: The International Journal of Research and Practice, 2025
Families of autistic youth often support their children's transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g.…
Descriptors: Advocacy, Hispanic Americans, Family (Sociological Unit), Autism Spectrum Disorders
Anne Huntjens; LMC (Wies) van den Bosch; Bram Sizoo; Ad Kerkhof; Filip Smit; Mark van der Gaag – Autism: The International Journal of Research and Practice, 2025
The effect of psychological treatment on social functioning, quality of life and autism traits in autistic people with suicidal behaviour remains largely unknown. At six Dutch mental health centres, 123 adult outpatients with "Diagnostic and Statistical Manual of Mental Disorders" (5th edition) diagnosed autism spectrum condition and…
Descriptors: Therapy, Quality of Life, Autism Spectrum Disorders, Symptoms (Individual Disorders)
Amanda Timmerman; Vasiliki Totsika; Valerie Lye; Laura Crane; Audrey Linden; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to have co-occurring mental health conditions compared to the general population, and mental health interventions have been identified as a top research priority by autistic people and the wider autism community. Autistic adults have also communicated that quality of life is the outcome that matters most to them in…
Descriptors: Adults, Autism Spectrum Disorders, Quality of Life, Randomized Controlled Trials
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