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Helen K. Røstad-Tollefsen; Benedicte Hagen Venås; Svein O. Kolset; Kjetil Retterstøl; Hanne Hennig Havdal; Marianne Nordstrøm – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly. Aim: To explore how external factors influence staff's motivation and performance of nutritional work with these residents. Method: Semi-structured qualitative interviews with 11 staff using systematic text condensation for…
Descriptors: Adults, Intellectual Disability, Residential Institutions, Residential Care
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Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
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Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
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Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
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Gillian Young; Maria Mathews; Leslie Meredith; Shannon L. Sibbald; Dana Ryan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: In partnership with PHSS, a community care agency in London, Ontario, we describe the person-centred planning model. Person-centred plans (PCPs) are mandated in the community care sector and created annually through discussions with the person-supported, staff, family/friends and community members. PCPs are individualised, integrated…
Descriptors: Foreign Countries, Community Health Services, Planning, Models
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Sohil Alqazlan; Faraj K. Alenezi; Khalid S. Alwadeai; Adel Saber Alanazi; Abdulrhman S. Alghamdi; Shahad Alarifi; Saleh Aba-Alkhayl; Mohammed A. Almeshari – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Asthma and respiratory diseases pose significant global health risks. Respiratory infections substantially impact individuals with Down syndrome, affecting their overall well-being. This study examines respiratory health risks associated with Down syndrome in Saudi Arabia. Method: A survey of 115 participants used convenience sampling…
Descriptors: Incidence, Symptoms (Individual Disorders), Down Syndrome, Physiology
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J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
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Min Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
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Louise D. Denne; Gwenllian Moody; Elinor Coulman; David Gillespie; Kate Ingarfield; Nicholas Manktelow; Corinna F. Grindle; J. Carl Hughes; Zac Taylor; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is a paucity of research into interventions that help people with intellectual disabilities learn to read. This feasibility study examines whether an online reading programme, Headsprout, with additional support strategies and supervision (the intervention), can be delivered by support workers/family carers and the feasibility of…
Descriptors: Reading Skills, Reading Instruction, Intellectual Disability, Online Courses
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Eke Bruinsma; Annelies A. de Bildt; Pieter J. Hoekstra; Gerda M. de Kuijper; Barbara J. van den Hoofdakker – Journal of Applied Research in Intellectual Disabilities, 2025
Background: We aimed to identify key factors in implementing and adhering to positive behaviour support (PBS), provided by frontline staff, targeting challenging behaviours of people with intellectual disabilities living in residential group homes. Method: Using semi-structured interviews with 12 frontline staff members, we collected perspectives…
Descriptors: Positive Behavior Supports, Behavior Problems, Intellectual Disability, Group Homes
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Laura C. Koch; Yona Lunsky; Laura St. John – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Canadian 24-h movement guidelines recommend that adults achieve 150 min per week of moderate-to-vigorous physical activity (MVPA), 7-9 h of sleep per night and spend no more than 8-h per day sedentary to optimise health and wellbeing. Method: Using a cross-sectional survey of 131 family caregivers of adults with intellectual and…
Descriptors: Foreign Countries, Physical Activity Level, Sleep, Adults
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Macey Barratt; Peter Lewis; Natalie Duckworth; Natasha Jojo; Viktorija Malecka; Signe Tomsone; Dita Rituma; Nathan J. Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative…
Descriptors: Parent Attitudes, Quality of Life, Child Rearing, Parent Child Relationship
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Kendra Thomson; Sarah Davis; Sarah Ludmilla Bernier; Carly Magnacca; Steve Noone; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…
Descriptors: Well Being, Adults, Intellectual Disability, Allied Health Personnel
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Kjersti Karlsen; Ellen Kathrine Munkhaugen; Hanne Kari Fossum; Trine Lise Bakken; Arvid Nikolai Kildahl – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail. Method: During a service development project, the participants (33 professionals,…
Descriptors: Intellectual Disability, Mental Health, Comorbidity, Adults