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Yu-Jung Hsieh; Wei-Sho Ho; Shu-Jou Sun – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents play a key role in the transition process of their children. After high school students with intellectual disabilities leave the school system, they need the cooperation of schools and families to ensure successful employment and independent living. Methods: A case study was conducted in a Taiwanese high school special…
Descriptors: Foreign Countries, Parent Role, Students with Disabilities, Intellectual Disability
Emma Scripps; Daniel Sutherland; Peter E. Langdon; Richard P. Hastings; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This review aimed to synthesise the literature about interventions for parents of adolescents with intellectual disability, including parental experience of receiving interventions and intervention effectiveness. Methods: Eligible interventions aimed to improve parenting skills and/or parent-adolescent relationships, adolescent…
Descriptors: Parents, Parent Child Relationship, Adolescents, Intellectual Disability
Agnieszka Wolowicz; Katarzyna Cwirynkalo – Journal of Applied Research in Intellectual Disabilities, 2025
Background: For many people with intellectual disabilities, the parenting role is inaccessible and/or constrained. This study provides insight into the lived experiences of parents with intellectual disabilities regarding violence and limiting their rights to parenthood in Poland. Method: Twenty-seven parents with intellectual disabilities who…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Child Rearing
Margaret Spencer; Susan Collings; Hannah Wilkinson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents with intellectual disability experience high rates of child removal, which affects their well-being. Method: Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe…
Descriptors: Grief, Parents with Disabilities, Intellectual Disability, Child Welfare
Maurice A. Feldman; Amanda Cappon; Kay Corbier; Vicky Caruana; Mechane Laronde; Kendra Thomson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns. Method: Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key…
Descriptors: Parent Education, Parents with Disabilities, Intellectual Disability, Neonates
Sara Colaianni; Madison M. Walsh; Sara Onnivello; Miranda E. Pinks; Chiara Marcolin; Kaylyn Van Deusen; Elisa Rossi; Nathaniel R. Riggs; Francesca Pulina; Lisa Daunhauer; Deborah J. Fidler; Silvia Lanfranchi – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…
Descriptors: Foreign Countries, Down Syndrome, Parent Role, Intervention
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
Egle Sumskiene; Violeta Gevorgianiene – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This paper explores experiences of mothers with intellectual disabilities, with an emphasis on oppressive circumstances and stereotypes that contribute to poorer antenatal and social outcomes for mothers and their children, potentially leading to child removal. Drawing parallels to archetypical figures of Solomon and Medea, we explore…
Descriptors: Mothers, Parents with Disabilities, Intellectual Disability, Stereotypes
Macey Barratt; Peter Lewis; Natalie Duckworth; Natasha Jojo; Viktorija Malecka; Signe Tomsone; Dita Rituma; Nathan J. Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative…
Descriptors: Parent Attitudes, Quality of Life, Child Rearing, Parent Child Relationship
Kate Oulton; Faith Gibson; Charlotte Kenten; Jessica Russell; Jo Wray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is a lack of evidence to inform the provision of safe hospital care and treatment to children with intellectual disabilities. Methods: Interviews were conducted with 52 parents/carers of 42 children with intellectual disabilities and 98 hospital staff about the care of children with intellectual disabilities during in-patient…
Descriptors: Children, Intellectual Disability, Child Safety, Security (Psychology)
Beth Tarleton; Katy Burch – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This paper recognises that there has been a long history of research into support for parents with intellectual disabilities in England and a helpful approach to integrating adults with intellectual disabilities in society called "Valuing People." This focus has now faded. Method: The paper draws together findings from three…
Descriptors: Parents with Disabilities, Intellectual Disability, Adults, Social Services
Fathimath Akhila; Asir John Samuel – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Existing literature failed to explore the parental expectations and experiences from physiotherapy for children with Down syndrome. Hence, we aimed to validate a semi-structured interview guide to explore parental experiences and expectations from physiotherapy for children with Down syndrome. Methods: A 28-item interview guide was…
Descriptors: Down Syndrome, Physical Therapy, Children, Parent Attitudes
Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Emiko Tanaka; Kinuko Sugiura; Marja W. Hodes; Maurice A. Feldman – Journal of Applied Research in Intellectual Disabilities, 2025
Background: While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan,…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Research
S. Collings; G. Hindmarsh; H. Wilkinson; G. Llewellyn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups. Method: A systematic review of population-level studies on parents with intellectual disability was undertaken from January…
Descriptors: Parents with Disabilities, Mothers, Intellectual Disability, Participant Characteristics
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