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The Role of Specialised Medical ID Expertise in Care Consultations for People with Intellectual Disabilities: Experiences of Caregivers and Patients
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Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People with Intellectual Disability in Hospitals: A Delphi Study
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Natalie Ong; Kelsie Boulton; Jacqueline Milne; Gail Tomsic; Adam Guastella; Natalie Silove; Janelle Weise; Janet Long; Merrilyn Walton; Annette Burgess – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Children and young people with intellectual disability have poor healthcare and are at risk of patient safety events due to lack of staff training and consensus on competencies for safe and quality care. For the adoption of reasonable adjustments in mainstream paediatric healthcare clinical competencies needed to be adapted to an…
Descriptors: Intellectual Disability, Children, Adolescents, At Risk Persons
Association of Mild Intellectual Disability/Borderline Intellectual Functioning and Post-Traumatic Stress Disorder to Treatment Outcome in Patients with Severe Mental Illness
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H. J. H. Smits; B. L. Seelen-de Lang; H. L. I. Nijman; E. J. M. Penterman; J. G. Nieuwenhuis; E. O. Noorthoorn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Understanding the associations among mild intellectual disability (IQ 50-70), borderline intellectual functioning (IQ 70-85) and post-traumatic stress disorder (PTSD) with treatment outcomes in severely mentally ill patients could contribute to better tailoring of care. Methods: One or more assessments using the Health of the Nation…
Descriptors: Mild Intellectual Disability, Posttraumatic Stress Disorder, Outcomes of Treatment, Patients
Factors Associated with Length of Hospital Stay for Forensic Psychiatric Inpatients with Intellectual Disabilities
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Penelope McKenna; Rosie England; Carmen Fadzelmulla-Moreno; Paul A. Thompson; Harm Boer; Peter E. Langdon – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: The aim of this study was to examine factors associated with length of stay within a psychiatric hospital for patients with intellectual disabilities who have a forensic history. Methods: Data about 111 patients were gathered retrospectively from historical records for the period of February 2011 to March 2021. Negative binomial…
Descriptors: Hospitals, Patients, Intellectual Disability, Age Differences
Evaluating Patients with Mucopolysaccharidosis Type III: A Scoping Review on Diagnostic and Follow-Up Approaches
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Agustina Sabino Romagnoli; Letícia Nunes Campos; Daniel Fernandez-Guzman; Sofia Wagemaker; Federico Fernandez Zelcer; Carlos Stegmann; Carina F. Argüelles; Laura F. Sosa; Ayla Gerk; Jorgelina Stegmann – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Mucopolysaccharidosis type III (MPS III) is a rare lysosomal storage disease with systemic complications. This scoping review aimed to synthesise evidence regarding methods to diagnose and monitor MPS III. Methods: We searched 10 databases for English and Spanish citations published from 2017 to 2022. Our study focused on human-based…
Descriptors: Clinical Diagnosis, Patients, Genetic Disorders, Diseases
More than 'Keeping an Eye': Ensuring Children with Intellectual Disabilities Are Safe and Feel Safe in Hospital
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Kate Oulton; Faith Gibson; Charlotte Kenten; Jessica Russell; Jo Wray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is a lack of evidence to inform the provision of safe hospital care and treatment to children with intellectual disabilities. Methods: Interviews were conducted with 52 parents/carers of 42 children with intellectual disabilities and 98 hospital staff about the care of children with intellectual disabilities during in-patient…
Descriptors: Children, Intellectual Disability, Child Safety, Security (Psychology)