Purpose: Access to research programs and increased diversity in research enrollment may be key to improving diverse populations' health and healthcare outcomes. To facilitate research recruitment, a Research Registry ("Registry"), a pre-recruitment database, was developed at an urban tertiary Autism Center ("Autism Center"). In…

In the realm of psychology and related fields, like school psychology, obtaining informed consent from clients or participants who are 18 years old or older is mandatory for researchers. However, if the individuals are below 18 years old or under a conservatorship, their assent is crucial even if their parent or legal guardian has provided formal…

Linking survey and social media data has gained popularity. However, obtaining consent from respondents to link social media is a known challenge. Using data from a nationally representative survey of the U.K. this study investigated whether respondents' a) activity frequency, b) activity variety and c) technical skills with smartphones are…

Valid consent requires the potential research participant understands the information provided. We examined current practice in 50 proposed Clinical Trials of Investigational Medicinal Products to determine how this understanding is checked. The majority of the proposals (n = 44) indicated confirmation of understanding would take place during an…

Artificial placentas (APs) are technologies that mimic the human placenta to treat extremely preterm infants. Being an invasive and risky technology, it will raise important ethical questions for human trials. Hence, in this Topic Piece we provide a blueprint of further issues to investigate. First, counselling will have the double role of…

As our modern world has become increasingly digitalized, various types of data from different data domains are available that can enrich survey data. To link survey data to other sources, consent from the survey respondents is required. This article compares consent to data linkage requests for seven data domains: administrative data, smartphone…

School-based, multiple gate mental health screening has been identified as a major component of social, emotional, and behavioral systems of support models, and a promising practice that can be used to address unmet mental health needs of children and adolescents. To better inform implementation of multiple gate screening programs, we completed an…

This paper provides an extensive literature review of current approaches to sexual consent and demonstrates their insufficiency for teaching higher education students about healthy sex. Their overemphasis on the giving of consent to the detriment of attention to the process of gaining consent, as well as their inappropriate utilisation of…

Objective: Examine undergraduate students' perceptions of the connections between alcohol consumption and sexual violence, associated campus-based prevention efforts, and recommendations for improvements. Participants: Undergraduate students (n = 244) at three large public universities. Methods: Qualitative thematic secondary analysis was…

The global scale of COVID-19 has constrained academics from conducting much person-facing research. Reactively, trend is increasing for digital-based methodologies capturing already existing online data. Scholars often 'scrape' user-postings from internet forums using coding algorithms and text capture tools, before analysing data, drawing…

The management of human fetal and embryological collections presents an ethical challenge that can be explored from different perspectives, particularly when considering informed consent. The "micro ethics" level focuses on parties engaged in giving and receiving human tissue while the "macro ethics" level focusses on the…

Involving children as stakeholders and including their voices in updating the Australian Early Years Learning Framework (for children birth to age 5) was a focus of this project design. The design was grounded in participatory approaches with a children's rights perspective, as the team prioritised seeking children's views and encouraging their…

Research in early childhood settings requires careful consideration of the impact on all children in the setting, whether participants or non-participants, and evolving ethical approaches in response to children's needs. However, flexible approaches and, 'in the moment', ethical adaptations are not routinely reported as part of early childhood…

Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the…

The growing importance of researching online activities, such as cyber-deviance and cyber-crime, as well as the use of online tools (e.g. questionnaires, games, and other interactive tools) has created new ethical and legal challenges for researchers, which can be even more complicated when researching adolescents. In this article, we highlight…