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Jenny Aspling; Veronica Svärd; Lincoln Humphreys; Christine Bigby; Magnus Tideman – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Active Support is a staff practice that aims to increase engagement of people with intellectual disabilities. This study seeks to: (1) identify the outcomes of staff using Active Support and how these are measured; (2) identify how the views of people with intellectual disabilities have been included in Active Support research. Method:…
Descriptors: Intellectual Disability, Participation, Staff Role, Program Effectiveness
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Esther R. Lindström; Kimberly A. McFadden – Journal of Applied Research in Intellectual Disabilities, 2025
Background and Aims: Students with intellectual disability benefit from high-quality instruction in reading and mathematics. Methods: This Theoretical Paper outlines the need for effective, evidence-based instructional practices for this population and the potential for observation research to inform such advancements. We report our systematic…
Descriptors: Students with Disabilities, Intellectual Disability, Reading Instruction, Mathematics Instruction
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Diane Fox; Julie Beadle-Brown; Jill Bradshaw; Christine Bigby; Lisa Richardson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Previous research identifies organisational culture as one of a number of factors associated with the quality of life outcomes of group home residents' with intellectual and developmental disabilities. This study aims to elaborate on the dimensions of group home culture in settings in England. Method: Participant observations and…
Descriptors: Intellectual Disability, Group Homes, Developmental Disabilities, Organizational Culture
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Roemer, Miriam; Verheul, Ellen; Velthausz, Frank – Journal of Applied Research in Intellectual Disabilities, 2018
Background: To support people with profound intellectual and multiple disabilities (PIMD), it is essential to understand how they experience their environment. Insight into perception behaviour may provide an entry point for improved understanding. Materials and Methods: A random sample of a 30-min video registration of five participants with PIMD…
Descriptors: Intellectual Disability, Multiple Disabilities, Perception, Video Technology
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Hsu, Yu-Chien; Tsai, Shu-Ling; Hsieh, Mei-Hui; Jenks, Michael S.; Tsai, Chang-Hsiung; Hsu, Min-Tao – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There has been a dramatic increase in autism around the world. However, little is known about the impact of the Taiwanese primogeniture system on mothers of children with ASD. Greater knowledge is needed to understand the life experiences of Taiwanese mothers with ASD children when a healthy male descendent is expected. Materials and…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Mothers
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Gustavsson, Marie; Starke, Mikaela – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Parents with intellectual disabilities (IDs) are often socially isolated and need support. Materials and Methods: This qualitative study is based on participant observations of a group for parents with with intellectual disabilities. Data were categorized and interpreted in the framework of social capital and symbolic interactionism.…
Descriptors: Parents, Intellectual Disability, Social Support Groups, Participant Observation
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Beadle-Brown, J.; Leigh, J.; Whelton, B.; Richardson, L.; Beecham, J.; Baumker, T.; Bradshaw, J. – Journal of Applied Research in Intellectual Disabilities, 2016
Background: People with severe and profound intellectual disabilities often spend substantial time isolated and disengaged. The nature and quality of the support appears to be important in determining quality of life. Methods: Structured observations and staff questionnaires were used to explore the quality of life and quality of support for 110…
Descriptors: Quality of Life, Severe Intellectual Disability, Social Support Groups, Predictor Variables
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Quilliam, Claire; Bigby, Christine; Douglas, Jacinta – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Group home frontline staff have a critical role in implementing service policies, yet research typically examines implementation issues from an organisational perspective. The aim of this study was to explore the self-perception of frontline staff about their role in group homes for people with intellectual disability. Method:…
Descriptors: Group Homes, Employee Attitudes, Intellectual Disability, Program Implementation
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Lyons, Elizabeth A.; Jones, Diana E.; Swallow, Veronica M.; Chandler, Colin – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Methods: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a…
Descriptors: Children, Youth, Intellectual Disability, Case Studies
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Bigby, Christine; Wiesel, Ilan – Journal of Applied Research in Intellectual Disabilities, 2015
Promoting community participation for people with intellectual disability through encounter with strangers is an integral part of the mission of disability support workers. This paper offers detailed micro-level analysis of the practices of support workers when they accompany a person with intellectual disability outside their home and explores…
Descriptors: Mental Retardation, Adults, Community Involvement, Focus Groups
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Forrester-Jones, Rachel; Beecham, Jennifer K.; Barnoux, Magali; Oliver, David; Couch, Elyse; Bates, Claire – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual…
Descriptors: Intellectual Disability, Aging (Individuals), Death, Older Adults
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Bigby, Christine; Knox, Marie; Beadle-Brown, Julie; Clement, Tim – Journal of Applied Research in Intellectual Disabilities, 2015
Background: A dimension of the culture in group homes is staff regard for residents. In underperforming group homes, staff regard residents as being not "like us" (Bigby, Knox, Beadle-Brown, Clement & Mansell, 2012). We hypothesized the opposite pole of this dimension, in higher performing group homes, would be that staff regard…
Descriptors: Interviews, Severe Mental Retardation, Group Homes, Employee Attitudes
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Yang, Xue; Byrne, Victoria; Chiu, Marcus Y. L. – Journal of Applied Research in Intellectual Disabilities, 2016
Background: By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Methods: Data were collected through the qualitative methods of interviews and observations among a…
Descriptors: Foreign Countries, Grounded Theory, Child Rearing, Family Role
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Johnson, Hilary; Douglas, Jacinta; Bigby, Christine; Iacono, Teresa – Journal of Applied Research in Intellectual Disabilities, 2012
Background: Social interaction is integral to social inclusion. Little is known about the nature of social interaction between adults with severe intellectual disability and those with whom they engage. Method: Participants were six adults with intellectual disability and people identified as those with whom they shared demonstrable pleasurable…
Descriptors: Grounded Theory, Job Satisfaction, Severe Mental Retardation, Interpersonal Relationship
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Sullivan, Alison; Winograd, Greta; Verkuilen, Jay; Fish, Marian C. – Journal of Applied Research in Intellectual Disabilities, 2012
Background: This study investigated associations between the presence of a child with autism or Asperger's disorder in the family, family functioning and grandmother experiences with the goal of better understanding grandparent involvement in the lives of grandchildren on the autism spectrum and their families. Methods: Mothers and grandmothers of…
Descriptors: Mothers, Autism, Grandparents, Pervasive Developmental Disorders
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