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Direct linkHugh Davies; Simon E. Kolstoe; Anthony Lockett – Research Ethics, 2024
Valid consent requires the potential research participant understands the information provided. We examined current practice in 50 proposed Clinical Trials of Investigational Medicinal Products to determine how this understanding is checked. The majority of the proposals (n = 44) indicated confirmation of understanding would take place during an…
Descriptors: Participation, Research Problems, Informed Consent, Comprehension
Gilardone, Giulia; Viganò, Mauro; Costantini, Giulio; Monti, Alessia; Corbo, Massimo; Cecchetto, Carlo; Papagno, Costanza – International Journal of Language & Communication Disorders, 2023
Background: The comprehension profile of people with agrammatism is a debated topic. Syntactic complexity and cognitive resources, in particular phonological short-term memory (pSTM), are considered as crucial components by different interpretative accounts. Aim: To investigate the interaction of syntactic complexity and of pSTM in sentence…
Descriptors: Informed Consent, Aphasia, Short Term Memory, Verbal Communication
Matic, Igor; De Nardi, Gianni; Steiner, Felix – AILA Review, 2021
Medical researchers are ethically and legally required to inform participants and get written permission before enrolling them into a human research project ("Informed Consent"). Accordingly, information and consent represent a complex procedure, and the participant concerned "must receive comprehensible oral and written…
Descriptors: Informed Consent, Ethics, Medical Research, Researchers
Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Download full textDichitchai Mettarikanon; Weeratian Tawanwongsri; Pitchaya Jaruvijitrattana; Sasipaka Sindhusen; Surinnart Charoenchitt; Patsaraporn Manunyanon – Contemporary Educational Technology, 2023
The informed consent process is integral to medical procedures, including skin biopsies, which are the definitive method for diagnosing challenging skin lesions. Educational videos are recognized for effective delivery of information for informed consent. This study aimed to evaluate the efficacy of an informed consent process using educational…
Descriptors: Informed Consent, Educational Media, Audiovisual Aids, Clinical Diagnosis
Rost, Michael; Nast, Rebecca; Elger, Bernice S.; Shaw, David – Research Ethics, 2021
This paper addresses psychological factors that might interfere with informed consent on the part of stable patients as potential early-phase clinical trial participants. Thirty-six semistructured interviews with patients who had either diabetes or gout were conducted. We investigated stable patients' attitudes towards participating in a…
Descriptors: Patients, Medical Research, Informed Consent, Psychological Patterns
Morrison-Beedy, Dianne; Ewart, Abigail; Ross, Samiha; Wegener, Rachel; Spitz, Alison – American Journal of Sexuality Education, 2022
Due to limited knowledge and exposure to sexual health information, refugee adolescent girls need health education programming and research studies that oftentimes require parental consent. We sought to understand the parental consent decision-making process of thirteen refugee parents from eight different countries who consented for their…
Descriptors: Refugees, Adolescents, Daughters, Parent Role
Mayne, Fiona; Howitt, Christine – International Journal of Early Childhood, 2019
This research explored how young children's research participation can be enhanced when an interactive narrative approach is embedded within research to enhance children's consent to participation and their understanding of the research process. The context for this research was a 1-h, science outreach programme delivered into Australian…
Descriptors: Foreign Countries, Young Children, Childrens Rights, Participatory Research
Beardsley, Marc; Martínez Moreno, Judit; Vujovic, Milica; Santos, Patricia; Hernández-Leo, Davinia – British Journal of Educational Technology, 2020
Advances in the field of multimodal learning analytics (MMLA) research is often accomplished by actively exploring new technologies and techniques related to the collection and analysis of data. Exploration of ethical principles and procedures for governing the use of new technologies and techniques, however, is not as readily pursued. As…
Descriptors: Records (Forms), Decision Making, Data Collection, Learning Analytics
Rogers, Rebecca; Labadie, Meredith – Journal of Early Childhood Literacy, 2018
Literacy researchers often include young children in the research process. Yet discussions about the complexities of gaining and keeping assent are often missing in research reports. In this paper, we report on our attempts to make the assent process, a typical requirement for Institutional Review Boards, an educative experience for children in a…
Descriptors: Critical Literacy, Young Children, Educational Research, Kindergarten
Biggs, John S. G.; Marchesi, August – Research Ethics, 2015
The length of participant information sheets (ISs) for research and difficulties in their comprehension have been a cause of increasing concern. We aimed to examine the information sheets in research proposals submitted to an Australian HREC in one year, comparing the results with national recommendations and published data. Information sheets in…
Descriptors: Informed Consent, Difficulty Level, Comprehension, Readability
Hurtado, B.; Jones, L.; Burniston, F. – Journal of Intellectual Disability Research, 2014
Background: Producing accessible information regarding health issues is very important in order to ensure that people with intellectual disabilities (ID) have equal access to services and can make informed decisions about their treatment. Method: This study examined whether an Easy Read leaflet improved service users' comprehension and…
Descriptors: Readability, Mental Retardation, Access to Information, Informed Consent
LaPoint-O'Brien, Tammy – Online Submission, 2013
Critical thinking is the focal point missed in many students' educations. Students are taught memorization with little time left for the development of critical thinking skills which allows for a deeper understanding and a richer experience. Learning to ask appropriate questions and deduce information in order to build a deeper connection to the…
Descriptors: Critical Thinking, Thinking Skills, Grade 9, History Instruction
