Progress in precision medicine is being achieved through the design of clinical trials that use genetic biomarkers to guide stratification of patients and assignation to treatment or control groups. Genetic analysis of biomarkers is, therefore, essential to complete their objectives, and this involves the study of biological samples from donor…

Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the…

The Confidentiality Advisory Group (CAG) is a specialised body that advises the Health Research Authority (HRA) and the Secretary of State for Health on requests for access to confidential information, in the absence of informed consent from its owners. Its primary role is to oversee the safe use of such information and to counsel the governing…

A rich guide for understanding the evolving research landscape in psychology, including changes to core research ethics concepts such as informed consent, privacy, and risk of harm. This handbook offers a thorough and authoritative discussion of the ethical issues in conducting research with human participants. Each chapter poses an important…

This article systematically reviews the role of learning analytics (LA) in collaborative learning, particularly exploring how it can empower both teachers and students. Based on the analysis of 87 articles, selected by adopting the PRISMA workflow, the study discusses the intersection of LA with collaborative learning (CL), emphasizing the…

This report focuses on data governance at post-secondary institutions and related organizations. Data governance is defined as the formal execution and enforcement of authority over the management of data and data-related assets (Seiner, 2014). An overview of data governance at higher education institutions provides detail on elements of data…

Our current federal postsecondary data system is incomplete and fails to provide today's students with the accurate, timely information that they need to inform their college choices and promote their success. As policymakers consider proposals to improve this federal data system, it is critical that they work in tandem to protect students'…

Information communications technologies (ICTs) like laptops, smartphones and portable storage devices facilitate travel, communication and documentation for researchers who conduct fieldwork. But despite increasing awareness about the ethical complications associated with using ICTs among journalists and humanitarians, there are few reflections on…

When conceptualising knowledge gained from tapping into an internet data pool, one may question many things which can include the role of the researcher and the researched, privacy and ethics, intention, authenticity and the vastness of scope. The researcher, regardless of research intention including moral or ethical positions, must acknowledge…

This eighth edition provides a current and comprehensive discussion of counselors' legal and ethical responsibilities, an examination of state and federal laws as they relate to practice, and helpful risk management strategies. Attorney Nancy Wheeler and Burt Bertram, a private practitioner and counselor educator, offer real-world practical tips…

While many strategies for protecting personal privacy rely on regulatory frameworks, consent, and anonymizing data, they are not always effective. Terms and Conditions often lag behind advances in technology, software, and user behaviours, and consent to use data for a range of unclear purposes may be provided unwittingly. As the commercial market…

The inclusion of remote digital practices (e-mail, texting, blogging, social media) to deliver social work services raises unique ethical and legal challenges for client and practitioner. Competent care necessitates providing clients with information that would materially affect clients' decisions whether to assume the risks, benefits, and…

Most studies on the use of digital student data adopt an ethical framework derived from human-subject research, based on the informed consent of the experimental subject. However, consent gives universities little guidance on using learning analytics as a routine part of educational provision: which purposes are legitimate and which analyses…

This case study reflects on the use of photographic interviews as a research method to involve children, aged between 4 and 11 years, in an ethnographic research project that took place in an English primary school. There has been growing interest in the use of visual methods in ethnographic research in recent years. Photographs can provide…

This paper considers some of the ethical issues surrounding the study of malicious activity in social networks, specifically using a technique known as "social honeypots" combined with the use of deception. This is a potentially touchy area of study that is common to social and behavioral research that is well understood to fall within…