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Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…
Descriptors: Test Reliability, Pain, Behavior, Adults
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Prain, M. I.; McVilly, K. R.; Ramcharan, P. – Journal of Intellectual Disability Research, 2012
Background: Most research into interactions with people who are congenitally deafblind involves observational data. In order for practitioners and researchers to have confidence in the findings of observational studies, researchers need to demonstrate that the processes employed are replicable and trustworthy. This paper draws on data from an…
Descriptors: Multiple Disabilities, Interrater Reliability, Researchers, Deaf Blind
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Waninge, A.; Rook, R. A.; Dijkhuizen, A.; Gielen, E.; van der Schans, C. P. – Research in Developmental Disabilities: A Multidisciplinary Journal, 2011
Caregivers of persons with profound intellectual and multiple disabilities (PIMD) often describe the quality of the daily movements of these persons in terms of flexibility or stiffness. Objective outcome measures for flexibility and stiffness are muscle tone or level of spasticity. Two instruments used to grade muscle tone and spasticity are the…
Descriptors: Test Reliability, Interrater Reliability, Measures (Individuals), Severe Mental Retardation
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Koski, Katja; Launonen, Kaisa – International Journal of Language & Communication Disorders, 2012
Background: Speech and language therapists (SLTs) working with adults who have multiple learning disabilities and complex communication needs often deliver their care via indirect therapy where SLTs train carers to communicate with their clients. Yet, very little is known about how SLTs assess the carers' communication skills prior to the training…
Descriptors: Communication Skills, Caregivers, Speech Language Pathology, Allied Health Personnel
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Thompson, Carla J. – International Journal of Special Education, 2011
An observational research study based on sensory integration theory was conducted to examine the observed impact of student selected multi-sensory experiences within a multi-sensory intervention center relative to the sustained focus levels of students with special needs. A stratified random sample of 50 students with severe developmental…
Descriptors: Sensory Integration, Intervention, Observation, Measures (Individuals)
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Petry, Katja; Kuppens, Sofie; Vos, Pieter; Maes, Bea – Research in Developmental Disabilities: A Multidisciplinary Journal, 2010
Recently, several instruments have been developed to measure the subjective component of the quality of life (QOL) of people with profound intellectual and multiple disabilities (PIMD). A next step, however, must be the further validation of these instruments. The present study aimed at evaluating the psychometric properties of one of these…
Descriptors: Check Lists, Multiple Disabilities, Severe Mental Retardation, Quality of Life