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Lau Caspar Thygesen; Tina Harmer Lassen; Trine Allerslev Horsbøl; Isabelle Pascale Mairey; Knud Juel; Christina Engel Hoei-Hansen; Susan Ishøy Michelsen – Journal of Intellectual Disabilities, 2024
Mortality disparities among persons with intellectual disability are important to guide health-care practices. The objective was to evaluate mortality patterns of persons with intellectual disability in a nationwide study from 1976 to 2020. This study establishes a Danish nationwide cohort of persons with intellectual disability and age- and…
Descriptors: Foreign Countries, Intellectual Disability, Mortality Rate, Severity (of Disability)
Santoro, Stephanie L.; Donelan, Karen; Constantine, Melissa – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Views can be collected from individuals (self-report) or others on their behalf (proxy-report). Objective: We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome. Methods: A series of key questions…
Descriptors: Intellectual Disability, Down Syndrome, Statistical Analysis, Data Collection
Kuske, Bettina; Wolff, Christian; Gövert, Uwe; Müller, Sandra Verena – Journal of Applied Research in Intellectual Disabilities, 2017
Background: This study investigated the application of a newly developed neuropsychological assessment, the Wolfenbütteler Dementia Test for Individuals with Intellectual Disabilities (WDTIM) in combination with the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID). Methods: The instruments were evaluated in…
Descriptors: Dementia, Foreign Countries, Identification, Psychological Evaluation
van den Bogaard, Kim J. H. M.; Nijman, Henk L. I.; Palmstierna, Tom; Embregts, Petri J. C. M. – Journal of Mental Health Research in Intellectual Disabilities, 2018
Introduction: People with intellectual disabilities and co-occurring psychopathology have a relatively high likelihood to engage in aggressive behavior. Nevertheless, structured clinical assessment of aggressive behavior, including when and where it occurs, is scarce in this population. Methods: On three wards specializing in the care for people…
Descriptors: Intellectual Disability, Aggression, Mild Intellectual Disability, Psychopathology
Chien, Chi-Wen; Rodger, Sylvia; Copley, Jodie – International Journal of Disability, Development and Education, 2017
Children with developmental disabilities are at risk for limited participation in everyday activities. This study investigated factors that hindered or facilitated participation in 58 children with moderate-to-severe developmental disabilities who attended special schools. The parents completed surveys on their children's participation,…
Descriptors: Moderate Intellectual Disability, Severe Intellectual Disability, Developmental Disabilities, Pervasive Developmental Disorders
Braatveit, Kirsten J.; Torsheim, Torbjørn; Hove, Oddbjørn – Journal of Mental Health Research in Intellectual Disabilities, 2018
Introduction: There is reason to believe that many individuals with substance use disorders (SUD), who are in contact with services, have an undiagnosed intellectual disability. The aim of the present study was to investigate the prevalence of intellectual and borderline intellectual disabilities (ID/BID) among inpatients with SUD and to further…
Descriptors: Substance Abuse, Severe Intellectual Disability, Intellectual Disability, Incidence
Gawlik, Krystyna; Zwierzchowska, Anna; Celebanska, Diana – Journal of Applied Research in Intellectual Disabilities, 2018
Introduction: This study assessed overweight, obesity and lipid profiles in adults with intellectual disability and compared these metrics with their physical activity. Materials and Method: Basic somatic parameters, lipid profile and weekly physical activity were examined in 27 adults with moderate intellectual disability. Chi-square independence…
Descriptors: Physical Activities, Obesity, Intellectual Disability, Adults
Harrison, Rachel Abigail; Bradshaw, Jill; Forrester-Jones, Rachel; McCarthy, Michelle; Smith, Sharon – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Despite the importance of social networks for health and well-being, relatively little is known about the ways in which adults with intellectual disabilities in the U.K. experience their social networks. Method: A systematic review was completed to identify research focused on the social networks of adults with intellectual…
Descriptors: Social Networks, Intellectual Disability, Adults, Self Concept
Hess, Mailee; Campagna, Elizabeth J.; Jensen, Kristin M. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Adults with intellectual or developmental disability (ID/DD) have multiple risks for low bone mineral density (BMD) without formal guidelines to guide testing. We sought to identify risk factors and patterns of BMD testing among institutionalized adults with ID/DD. Methods: We evaluated risk factors for low BMD (Z-/T-score < -1) and…
Descriptors: Body Composition, Institutionalized Persons, Adults, Intellectual Disability
Friedman, Carli – Research and Practice for Persons with Severe Disabilities, 2018
Medicaid Home and Community Based Services (HCBS) waiver programs provide the majority of long-term services and supports for people with intellectual and developmental disabilities (IDD). Relatively new (2014) HCBS rules (CMS 2249-F/2296-F) governing these programs require "meaningful community" integration of people with disabilities…
Descriptors: Stakeholders, Intellectual Disability, Developmental Disabilities, Community Services
Polišenská, Kamila; Kapalková, Svetlana; Novotková, Monika – Journal of Speech, Language, and Hearing Research, 2018
Purpose: The study aims to describe receptive language skills in children with intellectual disability (ID) and to contribute to the debate on deviant versus delayed language development. This is the 1st study of receptive skills in children with ID who speak a Slavic language, providing insight into how language development is affected by…
Descriptors: Receptive Language, Language Skills, Intellectual Disability, Sentences
Oppewal, Alyt; Schoufour, Josje D.; van der Maarl, Hanne J. K.; Evenhuis, Heleen M.; Hilgenkamp, Thessa I. M.; Festen, Dederieke A. – American Journal on Intellectual and Developmental Disabilities, 2018
We aim to provide insight into the cause-specific mortality of older adults with intellectual disability (ID), with and without Down syndrome (DS), and compare this to the general population. Immediate and primary cause of death were collected through medical files of 1,050 older adults with ID, 5 years after the start of the Healthy Ageing and…
Descriptors: Older Adults, Intellectual Disability, Diseases, Aging (Individuals)
van Duijvenbode, Neomi; Didden, Robert; VanDerNagel, Joanne E. L.; Korzilius, Hubert P. L. M.; Engels, Rutger C. M. E. – Journal of Intellectual Disabilities, 2018
We examined cognitive deficits in problematic drinkers with and without mild to borderline intellectual disability (MBID). Problematic drinkers were expected to show a significantly lower estimated performance IQ (PIQ), but not a lower estimated verbal IQ (VIQ), compared to light drinkers. Participants (N = 474) were divided into four groups based…
Descriptors: Mild Intellectual Disability, Alcohol Abuse, Foreign Countries, Adults
Wolfe, Kate; Stueber, Kerstin; McQuillin, Andrew; Jichi, Fatima; Patch, Christine; Flinter, Frances; Strydom, André; Bass, Nick – Journal of Applied Research in Intellectual Disabilities, 2018
Background: An increasing number of genetic causes of intellectual disabilities (ID) are identifiable by clinical genetic testing, offering the prospect of bespoke patient management. However, little is known about the practices of psychiatrists and their views on genetic testing. Method: We undertook an online survey of 215 psychiatrists, who…
Descriptors: Genetics, Psychiatry, Intellectual Disability, Referral
Domínguez-Berjón, M. Felícitas; Zoni, Ana Clara; Esteban-Vasallo, María D; Sendra-Gutiérrez, Juan Manuel; Astray-Mochales, Jenaro – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The objective was to describe the main causes of hospitalization in people with Angelman syndrome (AS). Method: Population-based cross-sectional study in the Community of Madrid (CM), Spain. The information source for AS cases was the information system for rare diseases in the CM. Variables related to hospitalization, for the period…
Descriptors: Case Studies, Hospitals, Medical Evaluation, Age Differences