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Direct linkMarissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
Buimer, Hendrik P.; Siebelink, Nienke M.; Gaasterland, Annemarije; van Dam, Kirstin; Smits, Annelies; Frederiks, Kyra; van der Poel, Agnes – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Gaining insight into sleep-wake patterns of persons with intellectual disabilities is commonly done using wrist actigraphy. For some people, contactless alternatives are needed. This study compares a contactless bed sensor with wrist actigraphy to monitor sleep-wake patterns of people with moderate to profound intellectual…
Descriptors: Sleep, Intellectual Disability, Assistive Technology, Measurement Equipment
Santoro, Stephanie L.; Donelan, Karen; Constantine, Melissa – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Views can be collected from individuals (self-report) or others on their behalf (proxy-report). Objective: We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome. Methods: A series of key questions…
Descriptors: Intellectual Disability, Down Syndrome, Statistical Analysis, Data Collection
Roll, Anne E.; Koehly, Laura M. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: For people with intellectual disabilities (ID), social networks play a key role in facilitating social inclusion, health, and quality of life. This study shows that a multi-informant approach to collecting social network data improves our understanding of the social worlds of people with Down Syndrome (DS). Method: A mixed methods…
Descriptors: Social Networks, Down Syndrome, Measurement Techniques, Data Collection
Maes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Genevi̬ve; Van der Putten, Annette РJournal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
Hwang, I-Ting; Hallock, Taye M.; Schwartz, Ariel E.; Roth, Stephanie; Pfeiffer, Beth; Kramer, Jessica M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We conducted a rapid scoping review to identify how inclusive research teams use technology during the research process that could support remote collaboration during public health emergencies like the COVID-19 pandemic. Method: We searched three databases and conducted a hand search. Two independent reviewers screened 1498 abstracts…
Descriptors: Technology, Research, Cooperation, Inclusion
Wilson, Nathan J.; Chen, Yu-Wei; Mahoney, Natasha; Buchanan, Angus; Marks, Anne; Cordier, Reinie – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Experiences of people with intellectual disability are often reported by proxy, excluding the person's own perception. To assist people with intellectual disabilities ability to communicate their own experiences, the current study explored the feasibility, reliability and validity of experience sampling methods (ESMs) for people with…
Descriptors: Sampling, Experience, Adults, Intellectual Disability
Petropoulou, Evangelia; Finlayson, Janet; Hay, Margaret; Spencer, Wendy; Park, Richard; Tannock, Hugh; Galbraith, Erin; Godwin, Jon; Skelton, Dawn A. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Providers of supported living services to adults with intellectual disabilities (IDs) in the United Kingdom have procedures in place to monitor injuries; this provides opportunity to learn about the injuries being reported and recorded. The aim was to determine the incidence, causes and types of injuries experienced by 593 adults with…
Descriptors: Foreign Countries, Injuries, Adults, Intellectual Disability
