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The Sociodemographic Characteristics of Mothers with Intellectual Disability: A Review of Population-Level Studies
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S. Collings; G. Hindmarsh; H. Wilkinson; G. Llewellyn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups. Method: A systematic review of population-level studies on parents with intellectual disability was undertaken from January…
Descriptors: Parents with Disabilities, Mothers, Intellectual Disability, Participant Characteristics
Negative and Positive Experiences during the COVID-19 Pandemic in Canadians with Developmental Disabilities: A One-Year Ontario-Based Survey
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Caroline Kassee; Patrick Jachyra; Vijitha Mahalingam; Ami Tint; Hsiang-Yuan Lin; Stephanie H. Ameis; Adriana Di Martino; Yona Lunsky; Meng-Chuan Lai – Journal of Applied Research in Intellectual Disabilities, 2024
Purpose: Understanding the experiences of people with developmental disabilities during the initial period of COVID-19 pandemic. Methods: Individuals with developmental disabilities and their caregivers completed baseline and up to five follow-up online surveys using the CRISIS-AFAR measures, between July 2020 and September 2021. We used…
Descriptors: Foreign Countries, COVID-19, Pandemics, Developmental Disabilities
Formal Support and Service Needs of Family Caregivers of Adults with Intellectual and/or Developmental Disabilities in India
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Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
Mental Health Services for Adults with Intellectual Disabilities: A Qualitative Study of Patient Characteristics, Associated Factors and Consequent Needs for Adaptation in Assessment and Treatment
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Kjersti Karlsen; Ellen Kathrine Munkhaugen; Hanne Kari Fossum; Trine Lise Bakken; Arvid Nikolai Kildahl – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail. Method: During a service development project, the participants (33 professionals,…
Descriptors: Intellectual Disability, Mental Health, Comorbidity, Adults
Challenges to Conducting Randomised Controlled Trials with Adults with Intellectual Disabilities: Experiences of International Experts
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Mulhall, Peter; Taggart, Laurence; McAloon, Toni; Coates, Vivien – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Globally, conducting randomised controlled trials can be a complex endeavour. The complexity increases when including participants with cognitive or intellectual disabilities. A fuller understanding of the barriers and challenges that can be expected in such trials may help researchers to make their trials more inclusive for people…
Descriptors: Randomized Controlled Trials, Adults, Intellectual Disability, Expertise
Parent-to-Parent Support Providers: How Recruits Are Identified
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Dodds, Robin L.; Singer, George H. S. – Journal of Applied Research in Intellectual Disabilities, 2018
Objective: To examine selection criteria for Parent-to-Parent support parents trained to provide support to other parents of children with disabilities. Method: Ten leaders of Parent-to-Parent programmes participated in telephone interviews to explore attributes associated with parents selected to be trained as support parents. Results:…
Descriptors: Telephone Surveys, Interviews, Selection Criteria, Parent Education