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Rebecca J. Anderson-Kittow; Richard Keagan-Bull; Jo Giles; Irene Tuffrey-Wijne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Increasing numbers of older adults with intellectual disabilities are living with ageing parents. These families need support to plan for the future to avoid crisis interventions following parental death. Method: Interviews and focus groups were conducted with people with intellectual disabilities (aged 40+) (N = 9), parents (N = 11)…
Descriptors: Family (Sociological Unit), Older Adults, Long Range Planning, Intellectual Disability
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Ruth Walker; Irene Belperio; Christine Bigby; Ilan Wiesel; Fiona Rillotta; Claire Hutchinson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family…
Descriptors: Transitional Programs, Family Environment, Group Homes, Adults
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Andrew Joyce; Perri Campbell; Jenny Crosbie; Erin Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Social enterprises have the potential to address some of the current barriers that people with an intellectual disability experience in transitioning to open employment opportunities. However, it is unknown in detail how social enterprises are able to facilitate this transition, which limits ability to scale-up these organisational…
Descriptors: Intellectual Disability, Organizational Communication, Institutional Characteristics, Business
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Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
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Brotherton, Michelle; Stancliffe, Roger J.; O'Loughlin, Kate; Wilson, Nathan J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention facilitated their independent participation in mainstream community groups and volunteering. Methods: We randomised 29 older Australians who…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Employment
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Barnard-Brak, Lucy; Richman, David M.; Mutua, Kagendo; Williamson, Amy – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Previous research has shown that post-secondary collegiate vocational educational programs often have positive effects on employment outcomes for young adults with intellectual and developmental disabilities. Aims: Using secondary data of a program in the United States collected over several years, we examined which intervention…
Descriptors: Predictor Variables, Employment, Adults, Intellectual Disability
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Lee, Chung Eun; Choi, Minsik – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Parents experience difficulties supporting children with intellectual disabilities when they exit the school system. One promising way to mitigate this problem is to set up school-based parent support groups. This study aimed to examine the development and feasibility of school-based parent support groups in South Korea designed to…
Descriptors: Intellectual Disability, Social Support Groups, Parents, Empowerment
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Langdon, Peter E.; Thompson, Paul A.; Shepstone, Lee; Perez-Olivas, Gisela; Melvin, Clare L.; Barnoux, Magali; Alexander, Regi; Roy, Ashok; Devapriam, John – Journal of Applied Research in Intellectual Disabilities, 2023
Background: We examined whether a series of variables were related to the number of psychiatric inpatients using publicly available data about English psychiatric bed utilisation and NHS workforce. Method: Using linear regression, with auto-regressive errors, we examined relationships between variables over time using data from December 2013 to…
Descriptors: Foreign Countries, Psychiatric Hospitals, Psychiatry, Patients
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Peters, Vincent J. T.; Bok, Levinus A.; de Beer, Lieke; Rooij, Joyce J. M.; Meijboom, Bert R.; Bunt, Jan Erik H. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Transitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition. Method: A qualitative study was…
Descriptors: Down Syndrome, Parents, Health Personnel, Parent Attitudes
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Yu-Jung Hsieh; Wei-Sho Ho; Shu-Jou Sun – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents play a key role in the transition process of their children. After high school students with intellectual disabilities leave the school system, they need the cooperation of schools and families to ensure successful employment and independent living. Methods: A case study was conducted in a Taiwanese high school special…
Descriptors: Foreign Countries, Parent Role, Students with Disabilities, Intellectual Disability
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Taylor, Whitney D.; Cobigo, Virginie; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…
Descriptors: Family Involvement, Self Determination, Young Adults, Intellectual Disability
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Heron, Laura M.; Agarwal, Rumi; Greenup, Joel; Maddux, Marlaina; Attong, Nicole; Burke, Shanna L. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Transitioning to adult healthcare systems can be challenging, especially if left unaddressed for adolescents with special healthcare needs (ASHCN), such as those with autism spectrum disorder and attention-deficit/ hyperactivity disorder. While there is evidence of disparities between different demographics regarding general healthcare…
Descriptors: Adolescents, Health Needs, Autism, Pervasive Developmental Disorders
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Gauthier-Boudreault, Camille; Couture, Mélanie; Gallagher, Frances – Journal of Applied Research in Intellectual Disabilities, 2018
Background: At age 21, access to specialised services for youth with profound intellectual disability is reduced. Few studies have focused on parents' views concerning potential solutions to ease the transition to adulthood, and most existing solutions target young adults with less severe intellectual disability. The aim of this study is to…
Descriptors: Young Adults, Severe Intellectual Disability, Parent Attitudes, Semi Structured Interviews
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McKenzie, Katherine; Ouellette-Kuntz, Hélène; Blinkhorn, Ashleigh; Démoré, Ashley – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The transition period out of the educational system can be a source of stress for parents of young adults with intellectual and developmental disabilities, as families lose the support and respite offered by schools. Materials and Methods: Using a before and after design nested within a 24-month follow-up study of parents seeking adult…
Descriptors: Young Adults, Developmental Disabilities, Transitional Programs, Intellectual Disability