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McFarland, Bridget; Bryant, Lia; Wark, Stuart; Morales-Boyce, Tyson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…
Descriptors: Foreign Countries, Intellectual Disability, Interviews, Adjustment (to Environment)
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Sherwood, Gina; Parsons, Sarah – Research Ethics, 2021
The real-world navigation of ethics-in-practice versus the bureaucracy of institutional ethics remains challenging. This is especially true for research with children and young people who may be considered vulnerable by the policies and procedures of ethics committees but agentic by researchers. Greater transparency is needed about how this…
Descriptors: Informed Consent, Children, Adolescents, Social Science Research
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Ho, Portia; Downs, Jenny; Bulsara, Caroline; Patman, Shane; Hill, Anne-Marie – British Journal of Learning Disabilities, 2018
Background: People with intellectual disability encounter substantial healthcare discrepancies, yet are under-represented in research. While people with intellectual disability can make valuable contributions to research and consequently improve their quality of life, researchers encounter multiple challenges including them in research. One…
Descriptors: Intellectual Disability, Informed Consent, Injuries, Research