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Francesca Ribenfors; Lauren Blood; Chris Hatton; Anna Marriott – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Given the current sociopolitical climate, people with intellectual disabilities are spending more time at home. Much housing-related research focuses on informant-completed measures and quantifiable outcomes. By contrast, this article explores the perspectives of adults with intellectual disabilities concerning what they liked or…
Descriptors: Residential Programs, Residential Care, Intellectual Disability, Adults
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Renáta Tichá; Sandra L. Pettingell; James Houseworth; Julie Bershadsky; Roger J. Stancliffe; John G. Smith – Journal of Disability Policy Studies, 2025
In 2014, the U.S. Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. The Rule focuses on improving outcomes through person-centered services and supports. These outcomes include privacy and dignity. This study…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Privacy
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Kyla Arcebido; Emily Val Tuliao; Andryella Maxie Ibarra; Kai Russell; Aracelly Valdes; Sohum Shinkre; Samantha Gefen; Amelia Evans; Sabrina Barella; Joelle Wadei; Isabella Quinon; Takahiro Soda – Autism: The International Journal of Research and Practice, 2025
Genetic tests, such as Fragile X and Chromosomal Microarray, are recommended as a standard of care during the evaluation of autism spectrum disorder (ASD) and other neurodevelopmental disorders. However, previous research demonstrates low rates of genetic testing. This study aimed to identify the rates of genetic testing and patient demographic…
Descriptors: Genetic Disorders, Autism Spectrum Disorders, Neurodevelopmental Disorders, Databases
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Álvarez-Aguado, Izaskun; Vega Córdova, Vanessa; Spencer González, Herbert; González Carrasco, Félix; Jarpa Azagra, Marcela; Exss Cid, Katherine – British Journal of Learning Disabilities, 2022
Background: Self-determination is a key construct to guarantee the development of skills that allow people with disabilities to acquire control over their lives. However, people with intellectual disabilities may have premature ageing processes that make it difficult to exercise these skills. This study seeks to determine the self-determination…
Descriptors: Self Determination, Aging (Individuals), Intellectual Disability, Self Advocacy
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Erlend Refseth Pedersen; Audny Anke; Emmy Elizabeth Langøy; Monica Isabel Olsen; Erik Søndenaa – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Studies have found that presence of challenging behaviours and mental health problems limits employment for people with intellectual disabilities. This study investigates the associations between age, gender, living condition, level of intellectual disability, diagnoses, behaviour, mental health, and employment in adults with…
Descriptors: Foreign Countries, Intellectual Disability, Behavior Problems, Mental Disorders
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Friedman, Carli – Intellectual and Developmental Disabilities, 2021
One of the most common reasons people with intellectual and developmental disabilities (IDD) return to institutions is because of maladaptive behaviors. This study's aim was to examine the impact organizational supports can have on the community outcomes of people with dual diagnosis--those with IDD and psychiatric disabilities. We analyzed…
Descriptors: Intellectual Disability, Developmental Disabilities, Behavior Problems, Mental Disorders
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Salmon, Nancy; Garcia Iriarte, Edurne; Donohoe, Brian; Murray, Laura; Singleton, Greg; Barrett, Mary; Dillon, Marie – British Journal of Learning Disabilities, 2019
Background: Supporting people with intellectual disabilities to live well in communities they choose is deinstitutionalisation's central aim and endorsed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD) (UN, 2006). This study focused on the experiences of people with intellectual disabilities in Ireland when…
Descriptors: Foreign Countries, Intellectual Disability, Place of Residence, Adults
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Resciniti, Nicholas V.; Hong, Yuan; McDermott, Suzanne – Journal of Intellectual Disabilities, 2022
Adults with intellectual or developmental disabilities often have hypertension and mental illness, and are prescribed medications for treatment. This study examined psychotropic medication adherence as a mediator between the association of residence type and antihypertensive medication adherence for adults with intellectual or developmental…
Descriptors: Intellectual Disability, Developmental Disabilities, Adults, Hypertension
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Kim, Hyun Seung; Lee, Chung Eun; Kim, Kyung Mee – Journal of Intellectual & Developmental Disability, 2022
Background: Despite the increasing longevity of people with intellectual disability, community care systems are ill prepared to support the choices of people with intellectual disabilities for ageing well. This study aims to understand ageing experiences among middle-aged adults with intellectual disabilities and their family carers with a focus…
Descriptors: Foreign Countries, Intellectual Disability, Aging (Individuals), Adults
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D. J. Fitzpatrick; P. McCallion; M. McCarron; E. A. Burke – Journal of Intellectual & Developmental Disability, 2024
Background: Constipation impacts health-related quality of life with a burden similar to other chronic conditions. This study characterises the prevalence of constipation and its associated factors in older adults with intellectual disability. Methods: Data from the Intellectual Disability Supplement of The Irish Longitudinal Study on Ageing was…
Descriptors: Foreign Countries, Aging (Individuals), Epidemiology, Intellectual Disability
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Stancliffe, Roger J.; Tichá, Renáta; Pettingell, Sandra L.; Houseworth, James; Bershadsky, Julie – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Deinstitutionalization research shows better services and outcomes relative to institutional life but has not compared formerly institutionalised and never-institutionalised service users. Methods: We used propensity score matching (PSM) to match formerly institutionalised and never-institutionalised participants on six personal…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Facilities
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McCausland, Darren; McCarron, Mary; McCallion, Philip – British Journal of Learning Disabilities, 2023
Background: Before COVID-19, people with intellectual disabilities were digitally excluded, facing difficulties accessing and using technology. The pandemic outbreak closed down many in-person services and supports for this population. Methods: This study examined changes in technology use to support the healthcare and social connections of older…
Descriptors: Older Adults, Intellectual Disability, Computer Use, COVID-19
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Rinaldi, Romina; Duplat, Jordan; Haelewyck, Marie-Claire – Journal of Intellectual Disabilities, 2022
Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set…
Descriptors: Adults, Intellectual Disability, Access to Health Care, Needs
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Tilley, Elizabeth; Jordan, Joanne; Larkin, Mary; Vseteckova, Jitka; Ryan, Sara; Wallace, Louise – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with intellectual disabilities and behaviours that challenge others are living longer. This review aimed to explore what is known about the health and social care needs, experiences, service interventions and resources of and for this population as they transition to different care contexts in the UK. Method: A rapid scoping…
Descriptors: Foreign Countries, Older Adults, Intellectual Disability, Behavior Problems
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McCausland, Darren; Stancliffe, Roger J.; McCallion, Philip; McCarron, Mary – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Transport is an important basis for social participation. Challenges to accessing and using transport for people with intellectual disabilities increase their risk of exclusion and loneliness. Method: Data from a nationally representative study of older people with intellectual disabilities (n = 708) were used to examine longitudinal…
Descriptors: Transportation, Travel, Older Adults, Intellectual Disability
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