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Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic
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Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia – British Journal of Learning Disabilities, 2023
Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic…
Descriptors: Experience, Mothers, Severe Disabilities, Severe Intellectual Disability
'Different Things at Different Times': Wellbeing Strategies and Processes Identified by Parents of Children Who Have an Intellectual Disability or Who Are Autistic, or Both
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Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Effects of High-Tech versus Low-Tech AAC on Indices of Happiness for School-Aged Children with Multiple Disabilities
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Christine Holyfield; Elizabeth Lorah – Journal of Developmental and Physical Disabilities, 2023
The purpose of this study was to evaluate the effect of two AAC technologies on indices of happiness for school-age children with multiple disabilities during interactions with their school speech-language pathologists. The study applied a post host secondary analysis of a previously completed single-subject alternating treatment design study…
Descriptors: Children, Multiple Disabilities, Augmentative and Alternative Communication, Assistive Technology
The Perspectives of Professional Caregivers on Quality of Life of Persons with Profound Intellectual and Multiple Disabilities: A Qualitative Study
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Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms
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Wissing, Maureen B. G.; Fokkens, Andrea S.; Dijkstra, Roos; Hobbelen, Johannes S. M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. Methods: Care professionals and family…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Symptoms (Individual Disorders)
A Comparison of Natural and Non-Natural Soundscapes on People with Severe or Profound Intellectual and Multiple Disabilities
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van den Bosch, Kirsten A.; Andringa, Tjeerd C.; Peterson, Wolter; Ruijssenaars, Wied A. J. J. M.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2017
Background: Previous research indicates that there is a relationship between the auditory environment and the core affects (or mood) of people with severe or profound intellectual disability. We conducted a systematic study to further explore this relationship. Method: Thirteen participants with severe or profound intellectual disability and…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Auditory Stimuli, Sensory Experience
"I Love My Sister, but Sometimes I Don't": A Qualitative Study into the Experiences of Siblings of a Child with Profound Intellectual and Multiple Disabilities
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Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2016
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having…
Descriptors: Siblings, Severe Intellectual Disability, Multiple Disabilities, Sibling Relationship