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Direct linkDinishak, Janette; Akhtar, Nameera – Autism: The International Journal of Research and Practice, 2023
Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives…
Descriptors: Autism Spectrum Disorders, Autobiographies, Researchers, Research Methodology
Meghan E. Carey; Kiley J. McLean; Kyle Chvasta; Ashley de Marchena; Anne M. Roux – Autism: The International Journal of Research and Practice, 2025
Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or "scammer" participation in our focus group study, and increase data…
Descriptors: Autism Spectrum Disorders, Research Design, Research Methodology, Research Problems
Lucy Beasant; Alba Realpe; Sarah Douglas; Lorcan Kenny; Dheeraj Rai; Nicola Mills – Autism: The International Journal of Research and Practice, 2024
The purpose of this study is to explore the views of autistic adults on randomised controlled trials, specifically on processes such as randomisation and blinding, to understand the barriers and facilitators for recruiting autistic people to randomised controlled trials involving medications. We conducted one-to-one interviews with 49 autistic…
Descriptors: Autism Spectrum Disorders, Adults, Attitudes, Randomized Controlled Trials
Shurtz, Logan; Schwartz, Chloe; DiStefano, Charlotte; McPartland, James C.; Levin, April R.; Dawson, Geraldine; Kleinhans, Natalia M.; Faja, Susan; Webb, Sara J.; Shic, Frederick; Naples, Adam J.; Seow, Helen; Bernier, Raphael A.; Chawarska, Katarzyna; Sugar, Catherine A.; Dziura, James; Senturk, Damla; Santhosh, Megha; Jeste, Shafali S. – Autism: The International Journal of Research and Practice, 2023
Children with autism spectrum disorder are prescribed various medications to address behavior and mood. In clinical trials, individuals taking concomitant psychotropic medications often are excluded to maintain homogeneity and prevent contamination of clinical endpoints. However, this choice may compromise the representativeness of the sample. In…
Descriptors: Autism Spectrum Disorders, Drug Therapy, Incidence, Child Behavior
Pickard, Hannah; Pellicano, Elizabeth; den Houting, Jacquiline; Crane, Laura – Autism: The International Journal of Research and Practice, 2022
Despite more autism research taking place than ever before, there is a disconnect between the current landscape of autism research and what autistic people and their allies want from research. While participatory research has been proposed as a potential solution, we know little about how researchers (particularly, early career researchers) employ…
Descriptors: Autism, Pervasive Developmental Disorders, Participatory Research, Researchers
Roche, Laura; Adams, Dawn; Clark, Megan – Autism: The International Journal of Research and Practice, 2021
In recent years, a shift in focus has seen researchers seek to identify the priorities and preferences of key stakeholders to shape the direction of future research for those on the autism spectrum. The process of synthesising the views, knowledge and expertise of key stakeholders with either a lived or shared experience of autism is invaluable…
Descriptors: Autism, Pervasive Developmental Disorders, Research Needs, Stakeholders
Bottema-Beutel, Kristen; LaPoint, Shannon Crowley; Kim, So Yoon; Mohiuddin, Sarah; Yu, Qun; McKinnon, Rachael – Autism: The International Journal of Research and Practice, 2023
In this systematic evaluation of intervention research for transition-age autistic youth, we examined quality indicators in 193 group and single-case design intervention studies, which tested effects on 1258 outcomes. Behaviorally based interventions were the most common intervention type. We found significant threats to internal validity for the…
Descriptors: Autism Spectrum Disorders, Intervention, Transitional Programs, Program Effectiveness
Em J. E. Mittertreiner; Elise Ng-Cordell; Alana J. McVey; Connor M. Kerns – Autism: The International Journal of Research and Practice, 2024
Research has increasingly focused on the intersection between gender diversity and autism. Understanding the foci, methods, and rigor of recent studies could help guide and maximize impact in this accelerating research area. We conducted a scoping review of peer-reviewed literature on this topic published between 2018 and 2023. The search…
Descriptors: Autism Spectrum Disorders, Gender Differences, Intersectionality, Journal Articles
Marí-Bauset, Salvador; Peraita-Costa, Isabel; Donat-Vargas, Carolina; Llopis-González, Agustín; Marí-Sanchis, Amelia; Llopis-Morales, Juan; Morales Suárez-Varela, María – Autism: The International Journal of Research and Practice, 2022
Epidemiological studies, which can have inherent methodological limitations, are used to study the relation between endocrine disrupting chemicals and autism spectrum disorder. The objective is to systematically review the treatment of methodological limitations and assess the quality and strength of the findings in the available literature. The…
Descriptors: Autism, Pervasive Developmental Disorders, Epidemiology, Prenatal Influences
Lovisa Alehagen; Sven Bölte; Melissa H Black – Autism: The International Journal of Research and Practice, 2025
The International Classification of Functioning, Disability, and Health is a biopsychosocial framework of health-related functioning designed to provide a unifying system for health care, social services, education, and policy sectors. Since its publication in 2001, the International Classification of Functioning has been used to guide clinical…
Descriptors: Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Classification, Functional Behavioral Assessment
Guler, Jessy; Stewart, Kearsley A.; de Vries, Petrus J.; Seris, Noleen; Shabalala, Nokuthula; Franz, Lauren – Autism: The International Journal of Research and Practice, 2023
Most autism research has been conducted in high-income countries, with participants typically from White, upper-middle-income families. Given the disparities experienced by autistic individuals living in underserved communities globally, there is a critical need for research to include individuals from culturally, linguistically,…
Descriptors: Autism Spectrum Disorders, Foreign Countries, Research Methodology, Recruitment
Diana Weiting Tan; Laura Crane; Tori Haar; Melanie Heyworth; Rebecca Poulsen; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Participatory methods are having sweeping effects on research across the globe. To facilitate transparency around these methods, "Autism" introduced mandatory reporting of community involvement in January 2021. Here, we sought to determine the impact of this policy. To do so, we -- a team of Autistic and non-autistic researchers --…
Descriptors: Autism Spectrum Disorders, Community Involvement, Participatory Research, Global Approach
Kildahl, Arvid N.; Helverschou, Sissel B.; Rysstad, Anne L.; Wigaard, Elisabeth; Hellerud, Jane M. A.; Ludvigsen, Linn B.; Howlin, Patricia – Autism: The International Journal of Research and Practice, 2021
Requests for pathological demand avoidance diagnoses have increased over recent years but pathological demand avoidance remains a controversial issue. We undertook a systematic review of peer-reviewed studies of pathological demand avoidance, using standardised appraisal and synthesis methods, to assess how pathological demand avoidance is…
Descriptors: Autism, Pervasive Developmental Disorders, Adolescents, Children
McKinney, Ailbhe; Weisblatt, Emma J. L.; Hotson, Kathryn L.; Bilal Ahmed, Zahra; Dias, Claudia; BenShalom, Dorit; Foster, Juliet; Murphy, Suzanne; Villar, Sofía S.; Belmonte, Matthew K. – Autism: The International Journal of Research and Practice, 2021
Autistic children and adults who are non-verbal/minimally verbal or have an intellectual disability have often been excluded from Autism Spectrum Disorder research. Historical, practical and theoretical reasons for this exclusion continue to deter some researchers from work with this underserved population. We discuss why these reasons are neither…
Descriptors: Autism, Pervasive Developmental Disorders, Communication Disorders, Intervention
