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Qualitative Methodological Approaches Involving Participants with Intellectual Disabilities: Scoping Review of Literature Exploring Death and Dying
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Marissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
Sleep-Wake Monitoring of People with Intellectual Disability: Examining the Agreement of EMFIT QS and Actigraphy
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Buimer, Hendrik P.; Siebelink, Nienke M.; Gaasterland, Annemarije; van Dam, Kirstin; Smits, Annelies; Frederiks, Kyra; van der Poel, Agnes – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Gaining insight into sleep-wake patterns of persons with intellectual disabilities is commonly done using wrist actigraphy. For some people, contactless alternatives are needed. This study compares a contactless bed sensor with wrist actigraphy to monitor sleep-wake patterns of people with moderate to profound intellectual…
Descriptors: Sleep, Intellectual Disability, Assistive Technology, Measurement Equipment
Proxy-Report in Individuals with Intellectual Disability: A Scoping Review
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Santoro, Stephanie L.; Donelan, Karen; Constantine, Melissa – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Views can be collected from individuals (self-report) or others on their behalf (proxy-report). Objective: We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome. Methods: A series of key questions…
Descriptors: Intellectual Disability, Down Syndrome, Statistical Analysis, Data Collection
Looking Back, Looking Forward: Methodological Challenges and Future Directions in Research on Persons with Profound Intellectual and Multiple Disabilities
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Maes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
How People with Intellectual and Developmental Disabilities on Collaborative Research Teams Use Technology: A Rapid Scoping Review
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Hwang, I-Ting; Hallock, Taye M.; Schwartz, Ariel E.; Roth, Stephanie; Pfeiffer, Beth; Kramer, Jessica M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We conducted a rapid scoping review to identify how inclusive research teams use technology during the research process that could support remote collaboration during public health emergencies like the COVID-19 pandemic. Method: We searched three databases and conducted a hand search. Two independent reviewers screened 1498 abstracts…
Descriptors: Technology, Research, Cooperation, Inclusion