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Direct linkMarian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Yusuke Miyashita; Kumi Yanagida; Naoki Shirafuji; Ryuji Hoshide; Katsuyuki Sato; Keiichi Taku; Kimitoshi Nakamura – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with severe motor and intellectual disabilities have become an aging population, and high cancer morbidity and mortality are critical issues affecting their survival. Cancer screening is a crucial method of resolving this issue; however, a suitable screening method for them has not been established. Methods: We used…
Descriptors: Cancer, Human Body, Screening Tests, Psychomotor Skills
Verstraten-Oudshoorn, Lisette M.; Coppus, Antonia M.; Klein, Mieke; Bakker-van Gijssel, Esther J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A comprehensive multidisciplinary medical guideline for adults with Down syndrome is lacking in the Netherlands. In this study, we aim to explore parents' views on multidisciplinary care and identify which aspects of health care they find most important in the context of developing such a guideline. Method: This qualitative study used…
Descriptors: Parent Attitudes, Health Services, Down Syndrome, Medical Services
Abraham, Julie; Purandare, Kiran; McCabe, Joanne; Wijeratne, Anusha; Eggleston, Evelina; Oak, Katy; Laugharne, Richard; Roy, Ashok; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2022
Background: In the United Kingdom, policy change has led to specialist intellectual disability inpatient bed reduction. Little evidence exists assessing the results for patients admitted to such units. This study evaluates the outcomes of a specialist intellectual disability inpatient unit. Method: Gender/age/ethnicity/intellectual disability…
Descriptors: Intellectual Disability, Patients, Foreign Countries, Specialists
Nicholson, Emma; McDonnell, Thérèse; Conlon, Ciara; De Brún, Aoife; Doherty, Edel; Collins, Claire; Bury, Gerard; McAuliffe, Eilish – Journal of Applied Research in Intellectual Disabilities, 2023
Background: General practitioners (GP) report multiple challenges when treating individuals with intellectual disabilities which may influence referral rates. The study aimed to establish factors that influence GP's decision-making when referring a child with intellectual disabilities to the emergency department. Method: Discrete choice…
Descriptors: Children, Intellectual Disability, Family Practice (Medicine), Physicians
Song, Menghuan; Ware, Robert S.; Doan, Tan N.; Harley, David – Journal of Applied Research in Intellectual Disabilities, 2022
Background: In a cohort of adults with intellectual disability who were followed for up to 16-years, we investigated characteristics associated with frequent emergency department (ED) presentations, hospitalisation, and psychiatric care. Method: Community-dwelling adults with intellectual disability residing in Queensland, Australia, were followed…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Individual Characteristics
Tanja Plasil; Ellen Margrete Iveland Ersfjord; Kim Berge; Line M. Oldervoll – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities. Method: We conducted individual…
Descriptors: Barriers, Prevention, Clinical Diagnosis, Medical Services
