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Direct linkMin Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
Chung Eun Lee; Sehrish Shikarpurya – Journal of Applied Research in Intellectual Disabilities, 2025
Background and Aims: Siblings play a crucial role in shaping and guiding the experiences of their brother or sister with a disability across the lifespan. However, little is known about the positive outcomes of their roles and experiences as siblings. Understanding the positive outcomes challenges stereotypes and the stigma associated with…
Descriptors: Adults, Attitudes toward Disabilities, Intellectual Disability, Sibling Relationship
Louise Rixon; Richard P. Hastings; Hanna Kovshoff – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We…
Descriptors: Autism Spectrum Disorders, Sibling Relationship, Children, Early Adolescents
Sien Vandesande; Evy Meys; Bea Maes – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives…
Descriptors: Siblings, Children, Adolescents, Emotional Response
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Lee, Chung Eun; Hagiwara, Mayumi; Chiu, Chun-Yu; Takishima, Mayu – Journal of Applied Research in Intellectual Disabilities, 2023
Background: As individuals with intellectual and developmental disabilities age, their siblings are more likely to assume caregiving responsibilities. However, little is known about experiences of East Asian siblings with respect to their caregiving and future-planning within their own country, as well as other East Asian countries. Methods: Using…
Descriptors: Caregivers, Foreign Countries, Siblings, Intellectual Disability
Karni-Vizer, Nirit; Shamai Kaplan, Michal; Snir, Sharon – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This study examined how siblings and siblings-in-law of persons with intellectual disabilities experience the establishment of and processes within the couple relationship. Method: In-depth semi-structured interviews with 12 siblings and 12 siblings-in-law of persons with intellectual disabilities were analysed using thematic analysis.…
Descriptors: Intellectual Disability, Siblings, Marriage, Spouses
Williams, Caitlin A.; Bailey, Tom; Hastings, Richard P. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Existing research has predominately focused on dyadic relationships in families of children with intellectual disabilities. The aim of this study was to build on emerging literature exploring triadic relationships between a mother, sibling, and child with intellectual disability, investigating how they influence each other's…
Descriptors: Mothers, Parent Child Relationship, Intellectual Disability, Siblings
Lee, Chung eun; Kim, Kyung Mee – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Future planning has emerged as a global issue for families of individuals with intellectual and developmental disabilities due to the longer lives and limited long-term services and supports in the adult disability system. While it has received greater attention, most future planning studies only included parents of individuals with…
Descriptors: Long Range Planning, Intellectual Disability, Developmental Disabilities, Siblings
