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Direct linkGemma Testerink; Annet ten Brug; Gerdine Douma; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Snoezelen is often used for people with profound intellectual and multiple disabilities, but scarcely evaluated. This study aimed to provide insight into the application and perceived effects of snoezelen from the perspective of support persons. Method: We conducted an international survey with professionals (n = 130) and relatives (n…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Program Effectiveness, Professional Personnel
Skarsaune, Synne Nese; Hanisch, Halvor Melbye – Research and Practice for Persons with Severe Disabilities, 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this.…
Descriptors: Self Determination, Severe Intellectual Disability, Multiple Disabilities, Civil Rights
den Boer, M. C.; Voermans, M. A. C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods: A qualitative study using three case studies. Transcripts were analysed using Interpretative…
Descriptors: Mothers, Young Adults, Severe Intellectual Disability, Multiple Disabilities
Synne Nese Skarsaune – British Journal of Learning Disabilities, 2024
Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…
Descriptors: Severe Disabilities, Multiple Disabilities, Learning Disabilities, Adults
