Stakeholder-engaged research (SER) is common in many health-related fields and is gaining momentum in aphasiology. Stakeholder-engaged research shares many of the same goals and values as the Life Participation Approach to Aphasia (LPAA). The aim of this article is to identify how these two frameworks complement each other and can be applied to…

In the realm of psychology and related fields, like school psychology, obtaining informed consent from clients or participants who are 18 years old or older is mandatory for researchers. However, if the individuals are below 18 years old or under a conservatorship, their assent is crucial even if their parent or legal guardian has provided formal…

A key aspect of engaging in a large participatory action research (PAR) project is ensuring that novice participant-researchers have a general understanding of the PAR methodology. Lead researchers experienced in action research cannot expect novice participant-researchers to engage fully with the literature on PAR, but rather need a simple way to…

In this article, we reflect on our experiences with teaching ethnographic skills and sensibilities to MSc students at a Dutch university. Using methods such as (self)observation, journaling and reflection, we highlight dilemmas (conceptual, practical, ethical) faced by students when doing ethnographic fieldwork and dilemmas that emerged in…

This paper describes and reflects upon the first author's journey from teacher to researcher, working with deafblind children and young people, and the research teams' development of person-centred research methods. Historically deafblind people, particularly children and young people, have rarely been included in participation action research, in…

Background: Photovoice is an arts-based participatory action research methodology that is growing in popularity. Our aim was to systematically review photovoice research with people with intellectual disabilities to describe the current 'state of the art' and identify areas for further methodological consideration. Methods: We searched five…

This paper will explore the dichotomy of direction and stimulus through a reflection on arts-based methods used in a research study into post-industrial communities in South Wales and consider whether in participatory processes, a catalyst for artistic creativity could become construed as researcher-led control over the activities. Through an…

Evaluators widely agree that the involvement of key actors is a central aspect of quality practice. However, a scoping review of to what extent and how youth are included has not been explored. This is an important omission because many evaluations are done on programs that directly serve youth. We examined 159 evaluation reports in a publicly…

Purpose: The purpose of this paper is to illustrate and discuss the application of mindfulness practices rooted in Buddhism as the methodological praxis in implementing participatory action research (PAR) projects with older Thai adults. Design/methodology/approach: The paper draws on the researchers' reflexive accounts of participatory action…

Background: There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research. Methods: We co-developed training materials…

In this essay, we explore the tension between research using continuous improvement (CI) paradigms, such as improvement science, and conventional research, and the role and regulation of Institutional Review Board (IRB) oversight. We argue that the current regulatory structure privileges traditional research and hinders collaborative inquiry that…

The case study focuses on the co-development of stories about sexuality and gender with people with disabilities in Australian and New Zealand research that used inclusive research methods and narrative research approaches. Outlined in this case study are key aspects of the research from ethics to dissemination, looking closely at the…

Researching well-being has gained popularity over the last decades however, research methodologies have employed mostly surveys, and the use of qualitative and visual methods is still scarce. This study discusses using timelines as a tool for researching the well-being of student teachers in two different cultural contexts. Research data includes…

Participatory research can be promoted by scientific intermediary units, such as Science Shops. The overarching goal of these initiatives is thereby to foster a process of co-creation of the research questions to address societal needs that are relevant to scientific research and society at large. The InSPIRES project was a Horizon Europe…

Background: Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive…