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Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
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Ozlem Saritas Nakip; Selman Kesici; Gokcen Duzgun Konuskan; Mutlu Uysal Yazici; Bahadir Konuskan; Benan Bayrakci – American Journal on Intellectual and Developmental Disabilities, 2024
Extracorporeal life support, such as pediatric cardiac extracorporeal membrane oxygenation (ECMO), is associated with significant mortality and morbidity risk. This study evaluated cardiac ECMO survivors with central cannulation and found that 51.1% were discharged from the hospital. The study also revealed high rates of developmental delay…
Descriptors: Heart Disorders, Neurodevelopmental Disorders, Outcomes of Treatment, Developmental Delays
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Elizabeth Glenn; Allison Meyer; Audrey Blakeley-Smith – American Journal on Intellectual and Developmental Disabilities, 2025
The use of self-report to assess anxiety in adolescents with intellectual disability (ID) is notably underexplored. This study examined the impact of youth-level factors (i.e., age, verbal and cognitive ability, adaptive skills) on anxiety self-report completion and parent-youth agreement among 72 autistic adolescents with ID. We also examined if…
Descriptors: Anxiety, Adolescents, Intellectual Disability, Age Differences