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Direct linkCarly Moser; Meghan M. Burke; Leann Smith DaWalt; Julie Lounds Taylor – American Journal on Intellectual and Developmental Disabilities, 2025
Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as…
Descriptors: Self Determination, Parent Role, Advocacy, Autism Spectrum Disorders
Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
Amanallah Soltani; Deborah J. Fidler; Lina Patel; Kellie Voth; Anna J. Esbensen – American Journal on Intellectual and Developmental Disabilities, 2025
This study explored how caregiver-reported executive functioning domains, assessed by the BRIEF2 at baseline, predicted behavioral challenges reported by caregivers using the CBCL six months later. The sample included 94 youth with Down syndrome, aged 6 to 18 years. Results of hierarchical regression analyses revealed that, after controlling for…
Descriptors: Youth, Children, Adolescents, Down Syndrome
Rose E. Nevill; Gail E. Lovette; Katherine J. Bateman; Natalie M. Badgett; Genevieve R. Lyons; Emily C. Fuhrmann; Genevieve E. Bohac; Karen G. Orlando; Keith D. Page – American Journal on Intellectual and Developmental Disabilities, 2025
Children with neurodevelopmental disorders (NDD) are at high risk of challenging behavior, yet families experience consistent barriers to affordable parent education in behavior management. This study tested the efficacy of a caregiver-focused Extensions of Community Health Outcomes (ECHO) program in delivering behavior management education and…
Descriptors: Neurodevelopmental Disorders, Behavior Problems, Parent Education, Behavior Modification
Amelia Yanchik; Peter Vietze; Leah Esther Lax – American Journal on Intellectual and Developmental Disabilities, 2024
The literature has yet to review the differential effects of Natural Environment Teaching (NET) and Discrete Trial Teaching (DTT) on adaptive skills. A sample of 142 children diagnosed with ASD between the ages of 16 and 35 months received either DTT, NET, or both interventions (NET+ DTT). The Bayley Scales of Infant and Toddler Development (BSID)…
Descriptors: Autism Spectrum Disorders, Teaching Methods, Instructional Effectiveness, Skill Development
Hannah Singer; Elaine B. Clarke; Hillary K. Schiltz; Catherine Lord – American Journal on Intellectual and Developmental Disabilities, 2025
This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…
Descriptors: Caregivers, Coping, Developmental Disabilities, Young Adults
