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Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study
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Ashley Scott; Ryan Gould; Liam Quidore; Keryden Koeut-Futch; Emily Bock; Prisha Sujin Kumar; Staci Christensen; Augusta Edouard; Benjamin Golden; Eden Rapp; Kaethe Sigelko; Alexis Sokoloff; Caley Versfelt; Eric Rubenstein – Journal of Applied Research in Intellectual Disabilities, 2025
Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with…
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety
Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Qualitative Methodological Approaches Involving Participants with Intellectual Disabilities: Scoping Review of Literature Exploring Death and Dying
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Marissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
Prolonged Exposure Treatment for Post-Traumatic Stress Disorder: Single Case Studies in a Sample of Adults with Mild Intellectual Disabilities
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Paul Prins; Karin Nijhof – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Post-traumatic stress disorder (PTSD) is common in adults with intellectual disabilities. Often there are additional disorders such as substance use, mood and anxiety disorders. The current study focuses on the feasibility and initial efficacy of prolonged exposure (PE) for PTSD in adults with mild intellectual disabilities. The…
Descriptors: Posttraumatic Stress Disorder, Adults, Mild Intellectual Disability, Psychological Patterns
The Feasibility of an Adapted Virtual Mindfulness Intervention for Special Olympics Athletes and Their Caregivers
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Brianne Redquest; Chris A. Clark; Hangsel Sanguino; Yona Lunsky; Sue Hutton; Jonathan Weiss; Tom Davies; Carly A. McMorris – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Virtual mindfulness may be helpful for individuals with intellectual disabilities in the context of COVID-related disruptions of in-person programming, such as Special Olympics (SO). This study examined the feasibility of a virtual mindfulness intervention for SO athletes and their caregivers. Method: SO athletes (n = 44) and their…
Descriptors: Electronic Learning, Metacognition, Intellectual Disability, Athletes
Behavioural Interventions to Treat Anxiety in Adults with Autism and Moderate to Severe Intellectual Disabilities: The BEAMS-ID Feasibility Study
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Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Factors Influencing the Oral Health Behaviour of Dutch Adolescents with Mild to Borderline Intellectual Disabilities Living in Residential Care: A Qualitative Study
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Sonja M. Kalf-Scholte; Renate van Zoonen; Dina Sijperda-Abdul; Henk Algra; Cees Valkenburg – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Toothbrushing, limiting intake frequency, and scheduled visits to an oral healthcare professional (OHP) are key for good oral health. We aimed to explore factors influencing these oral health behaviours in Dutch adolescents with mild to borderline intellectual disabilities (MBID) in residential care. Method: Using a qualitative,…
Descriptors: Dental Health, Health Behavior, Adolescents, Mild Intellectual Disability
Virtual Acceptance and Commitment Training to Promote Wellbeing of Staff Supporting Adults with Intellectual Disabilities: A Feasibility Study
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Kendra Thomson; Sarah Davis; Sarah Ludmilla Bernier; Carly Magnacca; Steve Noone; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…
Descriptors: Well Being, Adults, Intellectual Disability, Allied Health Personnel
Exploring the Acceptability of a Peer-Delivered Mental Health Intervention to Support Young Adults with Intellectual and/or Developmental Disabilities
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Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
Mitigating the Impact of Family Burden on Psychological Health in Parents of Children with Special Needs: Buffering Effects of Resilience and Social Support
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Rakap, Salih; Vural-Batik, Meryem – Journal of Applied Research in Intellectual Disabilities, 2024
Background and Aims: This study examined the link between perceived family burden among parents of children with moderate and severe disabilities and their psychological health, and the potential moderating roles of resilience and social support. Methods: 256 parents completed an online questionnaire including Demographic Information Form, Family…
Descriptors: Special Needs Students, Parents, Psychological Needs, Mental Health