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Sanne van der Weegen; Agnes van der Poel; Eva Kagenaar; Ilse Bierhoff; Brigitte Boon – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Implementation issues often impede the realisation of the potential benefits of technology in disability care organisations for people with disabilities. Therefore, we conducted a longitudinal study to gain insights into the barriers and facilitators to implementation. Methods: From 2019 to 2022, data were collected using…
Descriptors: Program Implementation, Disabilities, Barriers, Influences
Judit Fullana; Maria Pallisera; Gemma Díaz-Garolera – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: The Convention on the Rights of Persons with Disabilities establishes that the support to independent living should be community-based and under the choice and control of each person. This study compares the assessment of support practices by people with intellectual disabilities receiving support versus support staff and by people…
Descriptors: Independent Living, Daily Living Skills, Intellectual Disability, Interpersonal Relationship
Deborah Chinn; Tony Levitan; Andrew Power; Katy Brickley; Shalim Ali – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Shared housing for adults with intellectual disabilities with staff support, is a common housing model internationally. We explored an overlooked aspect of group homes, namely the extent to which they enable a sense of 'feeling at home' for residents. Method: A diverse group of 19 housemates participated in a photovoice study.…
Descriptors: Adults, Intellectual Disability, Group Homes, Foreign Countries
J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
Sien Vandesande; Evy Meys; Bea Maes – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives…
Descriptors: Siblings, Children, Adolescents, Emotional Response
Élise Milot; Ann-Sophie Otis; Kévin Lavoie; Martin Caouette; Bertille Marthouret – Journal of Applied Research in Intellectual Disabilities, 2024
Background: This exploratory study aimed to enhance the understanding of practitioners' experiences within LGBTQ+ community organisations when providing interventions for LGBTQ+ individuals with intellectual disabilities. Three specific objectives were outlined: to document the situations and challenges encountered by practitioners; to identify…
Descriptors: LGBTQ People, Intervention, Intellectual Disability, Needs Assessment
Kelli A. Sanderson; Meghan M. Burke; Jennifer L. Bumble – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the…
Descriptors: Adults, Children, Intellectual Disability, Developmental Disabilities
Ruth Walker; Irene Belperio; Christine Bigby; Ilan Wiesel; Fiona Rillotta; Claire Hutchinson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family…
Descriptors: Transitional Programs, Family Environment, Group Homes, Adults
Eke Bruinsma; Annelies A. de Bildt; Pieter J. Hoekstra; Gerda M. de Kuijper; Barbara J. van den Hoofdakker – Journal of Applied Research in Intellectual Disabilities, 2025
Background: We aimed to identify key factors in implementing and adhering to positive behaviour support (PBS), provided by frontline staff, targeting challenging behaviours of people with intellectual disabilities living in residential group homes. Method: Using semi-structured interviews with 12 frontline staff members, we collected perspectives…
Descriptors: Positive Behavior Supports, Behavior Problems, Intellectual Disability, Group Homes
Rachel Abigail Harrison; Jill Bradshaw; Michelle McCarthy – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Since the introduction of austerity measures in 2008, funding for care, welfare, services and support systems in the United Kingdom has been reduced. There is little research that explores the experiences of parents of adults with intellectual disabilities and service providers regarding care, relationships and social networks in times…
Descriptors: Adults, Intellectual Disability, Economic Climate, Budgeting
Ariana M. Mastrogiannis; Caren Steinway; Telmo C. Santos; Jack Chen; John Berens; Thomas Davis; Michelle Cornacchia; Jason Woodward; Ilka Riddle; Brittany Spicer; Charmaine Wright; Lee A. Lindquist; Sophia Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Needs
Pendl, Dominik; Glatz, Mathieu; Gasteiger-Klicpera, Barbara – Journal of Applied Research in Intellectual Disabilities, 2024
Background: In Austria, due to its history, only relatively little research on the topic of intellectual disabilities and dementia has been conducted to date. The present study thus aims to explore the challenges and tasks currently facing formal caregivers, together with assessing their wishes for further development. Methods: Ten semi-structured…
Descriptors: Foreign Countries, Caregivers, Intellectual Disability, Dementia
Diane Fox; Julie Beadle-Brown; Jill Bradshaw; Christine Bigby; Lisa Richardson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Previous research identifies organisational culture as one of a number of factors associated with the quality of life outcomes of group home residents' with intellectual and developmental disabilities. This study aims to elaborate on the dimensions of group home culture in settings in England. Method: Participant observations and…
Descriptors: Intellectual Disability, Group Homes, Developmental Disabilities, Organizational Culture
Dominique Grohmann; David Wellsted; Silvana E. Mengoni – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an intellectual disability; factors associated with frailty; and the potential impact of COVID-19 on frailty identification and…
Descriptors: Intellectual Disability, Adults, COVID-19, Pandemics
Ana Belén Correa; Ángel Castro; María Dolores Gil-Llario – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The present study examines the relationship between stereotypical beliefs about people with intellectual disabilities, desire for social distance, and general knowledge about human sexuality with attitudes towards the sexuality of adults with mild intellectual disabilities. Method: Two hundred fifty participants from staff, family and…
Descriptors: Stereotypes, Sex Stereotypes, Social Distance, Sexuality
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