NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 4 results Save | Export
The Role of Specialised Medical ID Expertise in Care Consultations for People with Intellectual Disabilities: Experiences of Caregivers and Patients
Peer reviewed Peer reviewed
Direct linkDirect link
Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Ultrasonography Is an Effective Tool for Breast Cancer Screening in Individuals with Severe Motor and Intellectual Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
Yusuke Miyashita; Kumi Yanagida; Naoki Shirafuji; Ryuji Hoshide; Katsuyuki Sato; Keiichi Taku; Kimitoshi Nakamura – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with severe motor and intellectual disabilities have become an aging population, and high cancer morbidity and mortality are critical issues affecting their survival. Cancer screening is a crucial method of resolving this issue; however, a suitable screening method for them has not been established. Methods: We used…
Descriptors: Cancer, Human Body, Screening Tests, Psychomotor Skills
Parents' Perspectives on Provided Health Care for Adults with down Syndrome: A Qualitative Interview Study
Peer reviewed Peer reviewed
Direct linkDirect link
Verstraten-Oudshoorn, Lisette M.; Coppus, Antonia M.; Klein, Mieke; Bakker-van Gijssel, Esther J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A comprehensive multidisciplinary medical guideline for adults with Down syndrome is lacking in the Netherlands. In this study, we aim to explore parents' views on multidisciplinary care and identify which aspects of health care they find most important in the context of developing such a guideline. Method: This qualitative study used…
Descriptors: Parent Attitudes, Health Services, Down Syndrome, Medical Services
'A Potentially Ticking Time Bomb' -- Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People with Intellectual Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
Tanja Plasil; Ellen Margrete Iveland Ersfjord; Kim Berge; Line M. Oldervoll – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities. Method: We conducted individual…
Descriptors: Barriers, Prevention, Clinical Diagnosis, Medical Services