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"What if I'm No Longer Around?": An Evaluative Description of a Structured Group Conversation about the Care for Persons with Profound Intellectual and Multiple Disabilities When They Outlive Their Parents
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Kasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
'It's Got Its Ups and Downs': What People with Intellectual Disabilities Living in Supported Living and Residential Care Like and Dislike about Their Home
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Francesca Ribenfors; Lauren Blood; Chris Hatton; Anna Marriott – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Given the current sociopolitical climate, people with intellectual disabilities are spending more time at home. Much housing-related research focuses on informant-completed measures and quantifiable outcomes. By contrast, this article explores the perspectives of adults with intellectual disabilities concerning what they liked or…
Descriptors: Residential Programs, Residential Care, Intellectual Disability, Adults
Increasing Physical Activity through an Adapted Web-Based Exercise Program for People with Intellectual Disabilities: Support Staff Are Crucial for Feasibility
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Sanna Fjellström; Jessica Hölttä; Anna Nordström; Eva Flygare Wallén; Marie Lund Ohlsson; Elisabeth Hansen – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are less physically active and suffer from ill-health more than the general population. Support staff play an important role in the person's life. This study aimed to explore the support staff's experiences regarding the feasibility of adapted web-based exercise for people with intellectual…
Descriptors: Intellectual Disability, Physical Activity Level, Health Behavior, Web Based Instruction