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Direct linkAshwin Karnik; Gurjot Malhi; Theodore Ho; Stacy Riffle; Kylie Keller; Soo-Jeong Kim – Journal of Autism and Developmental Disorders, 2025
Purpose: Access to research programs and increased diversity in research enrollment may be key to improving diverse populations' health and healthcare outcomes. To facilitate research recruitment, a Research Registry ("Registry"), a pre-recruitment database, was developed at an urban tertiary Autism Center ("Autism Center"). In…
Descriptors: Autism Spectrum Disorders, Patients, Enrollment, Informed Consent
Lindsay L. Shea; Mi-Yeet Wong; Wei Song; Katy Kaplan; Disha Uppal; Mark S. Salzer – Journal of Autism and Developmental Disorders, 2024
Peer support has been an undeveloped pathway for filling the service gap and to generate employment opportunities for autistic individuals. Peer supports have been deployed widely in mental health and among veterans and understanding the utility of this service modality among autistic individuals illuminates opportunities for research, policy, and…
Descriptors: Autism Spectrum Disorders, Peer Relationship, Social Support Groups, Individual Characteristics
Connie Anderson; Alan Iampieri; Leah Franklin; Amy Daniels; Katharine Diehl; J. Kiely Law – Journal of Autism and Developmental Disorders, 2024
To explore issues surrounding re-consenting youth in longitudinal studies as they reach legal adulthood interviews were conducted with 46 parents plus 13 autistic teens enrolled in the Simons Foundation Powering Autism Research for Knowledge (SPARK) study. Qualitative analysis focused on family sensitivities regarding guardianship decisions,…
Descriptors: Informed Consent, Pediatrics, Research Methodology, Autism Spectrum Disorders
