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Direct linkKarine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Einat Waizbard-Bartov; Emilio Ferrer; Brianna Heath; Derek S Andrews; Sally Rogers; Connor M Kerns; Christine Wu Nordahl; Marjorie Solomon; David G Amaral – Autism: The International Journal of Research and Practice, 2024
Many autistic children experience changes in core symptom severity across middle childhood, when co-occurring mental health conditions emerge. We evaluated this relationship in 75 autistic children from 6 to 11 years old. Autism symptom severity change was evaluated for total autism symptoms using the autism diagnostic observation schedule…
Descriptors: Young Children, Early Adolescents, Autism Spectrum Disorders, Mental Health
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – International Journal of Developmental Disabilities, 2024
Families with a child with profound intellectual and multiple disabilities (PIMD) have to manage the child's pervasive support needs. To ensure that families are able to manage these needs, they should be properly supported. However, knowledge about the specific support needs of these families is sparse and fragmented, nor is it known if and which…
Descriptors: Family Needs, Children, Severe Intellectual Disability, Multiple Disabilities
