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Samara M. Wolpe; Amanda R. Johnson; Sunny Kim – Journal of Autism and Developmental Disorders, 2025
With many teens having to transition from a mainly educational system of support to a set of health and social service systems (Shattuck et al. in Autism Res Treat https://doi.org/10.1155/2014/924182, 2017), there is a critical need to advance research and support services in the area of autism and transition to aid autistic* individuals and their…
Descriptors: Adolescents, Autism Spectrum Disorders, Transitional Programs, School Role
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Connie Anderson; Alan Iampieri; Leah Franklin; Amy Daniels; Katharine Diehl; J. Kiely Law – Journal of Autism and Developmental Disorders, 2024
To explore issues surrounding re-consenting youth in longitudinal studies as they reach legal adulthood interviews were conducted with 46 parents plus 13 autistic teens enrolled in the Simons Foundation Powering Autism Research for Knowledge (SPARK) study. Qualitative analysis focused on family sensitivities regarding guardianship decisions,…
Descriptors: Informed Consent, Pediatrics, Research Methodology, Autism Spectrum Disorders