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Direct linkHillary Schiltz; Dena Gohari; Jamie Park; Catherine Lord – Autism: The International Journal of Research and Practice, 2024
Many autistic people and people with non-spectrum neurodevelopmental disabilities (e.g. intellectual disability) report feeling lonely, which can negatively impact their well-being. There is little longitudinal research, however, tracking changes in how autistic people experience, conceptualize, and cope with loneliness throughout their lives. A…
Descriptors: Longitudinal Studies, Psychological Patterns, Autism Spectrum Disorders, Developmental Disabilities
Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
Caroline L. Roberts; Ashleigh H. Avina; Frank J. Symons – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (n = 15) was to begin to understand the treatment gap from the perspective of family caregivers. Methods: In…
Descriptors: Intellectual Disability, Family Role, Caregivers, Developmental Disabilities
Hannah Singer; Elaine B. Clarke; Hillary K. Schiltz; Catherine Lord – American Journal on Intellectual and Developmental Disabilities, 2025
This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…
Descriptors: Caregivers, Coping, Developmental Disabilities, Young Adults
Crystian Moraes Silva Gomes; Arthur Cassa Macedo; Evelyn Brunorio Salamão; Kellen Valladão Schiavo; Lilian Gazzoli Zanotelli – International Journal of Developmental Disabilities, 2024
Studies on the COVID-19 pandemic highlight detrimental effects of social distancing on mental health. These effects were also observed among caregivers of people with intellectual and developmental disabilities (IDD), who undergo particular challenges in this context. This study aimed to identify the coping strategies adopted by caregivers of…
Descriptors: Mental Health, Coping, Caregivers, Intellectual Disability
Eunyoung Son; Donghyun Ahn; Johanna Inhyang Kim; Sojung Kim – Journal of Intellectual & Developmental Disability, 2024
Background: Limited data exist on problematic sexual behaviour (PSB) in youth with developmental disabilities in South Korea. Method: Sixty-one parents of children with intellectual disabilities or autism spectrum disorder (aged 13-30) reported children's PSB and emotional, behavioural, cognitive, and interpersonal factors. The frequency of PSB in…
Descriptors: Foreign Countries, Behavior Problems, Sexuality, Developmental Disabilities
