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Direct linkEva Shin; Caitlin Ravichandran; Danielle Renzi; Barbara R. Pober; Christopher J. McDougle; Robyn P. Thom – Journal of Autism and Developmental Disorders, 2024
Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and…
Descriptors: Genetic Disorders, Disabilities, Cognitive Ability, Socioeconomic Status
Carly Hyde; Logan Shurtz; Nicole McDonald; Maria Pizzano; Charles A. Nelson; Elizabeth A. Thiele; Connie Kasar; Shafali Jeste – American Journal on Intellectual and Developmental Disabilities, 2025
Tuberous sclerosis complex (TSC) is a genetic condition characterized by both medical and neuropsychiatric diagnoses that emerge across the lifespan. As part of a clinical trial, caregivers of children with TSC were interviewed about their experiences navigating medical, school, and social services. Semistructured interviews (N = 20) with…
Descriptors: Genetic Disorders, Neuropsychology, Clinical Diagnosis, Control Groups
Fabiola Hermes Chesani; Carina Nunes Bossardi; Juliana Vieira de Araujo Sandri; Pollyana Bortholazzi Gouvea; Kristien Hens – Autism & Developmental Language Impairments, 2024
Understanding what people believe the causes of autism to be has implications for experiences of familial guilt and stigma. Using a qualitative approach, we investigated how Brazilian healthcare professionals, parents of young and adult autistic people and young and adult autistic people consider the origins of autism and the interaction between…
Descriptors: Autism Spectrum Disorders, Professional Personnel, Caregivers, Genetics
