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Direct linkLotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Pilar Trelles; Behrang Mahjani; Emma Wilkinson; Nicholas Buonagura; Lauren Donnelly; Jennifer Foss Feig; Danielle Halpern; Mary McKay; Paige Siper; Joseph D. Buxbaum; Alexander Kolevzon – Journal of Developmental and Physical Disabilities, 2025
Purpose: Family Peer Advocates (FPA) are used in healthcare broadly to facilitate engagement and address disparities in care. We previously reported on the benefit of FPAs in the care of autistic children on caregiver stress. Caregivers of autistic children report significant levels of caregiver stress, in particular when associated with…
Descriptors: Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Multiple Disabilities, Advocacy
