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Sarah Potthoff; Fee Roth; Matthé Scholten – Research Ethics, 2024
This study explores how qualitative health researchers navigate the demands of medical research ethics committees in Germany where qualitative research is subject to approval only when it is conducted in medical contexts. We present the results of a grounded theory study to investigate qualitative health researchers' experiences with procedural…
Descriptors: Medical Research, Health, Qualitative Research, Ethics
Hugo Boothby – Research Ethics, 2024
In 2019, a new national Ethics Review Authority (Etikprövningsmyndigheten, EPM) was created in Sweden. In 2020, Sweden's "Ethical Review of Research Involving Humans Act" was revised, tightening this legislation, and increasing penalties for its infraction. This article draws on empirical material generated by artistic research conducted…
Descriptors: Foreign Countries, Musicians, Disabilities, Legislation
Sarven S. McLinton; Sarah N. Menz; Bernard Guerin; Elspeth McInnes – Journal of Academic Ethics, 2024
Human Research Ethics Committee (HREC) reviewers often provide similar feedback across applications, which suggests that the problem lies in researcher awareness of key issues rather than novel, unsolvable challenges. If common problems can be addressed before lodgement by applicants referencing clear evidence-based supports (e.g., FAQs on common…
Descriptors: Ethics, Informed Consent, Research Committees, Research Methodology
Ellen Taylor-Bower; Kate Plaisted-Grant; Stephanie Archer – Educational Action Research, 2025
Drawing upon ongoing research exploring lived experiences of sensory overload, meltdown, and shutdown in autism as a framework, this article reflects on the challenges and benefits of employing participatory methods in doctoral research. In particular, the process of establishing and working with a Research Advisory Group to co-create a…
Descriptors: Autism Spectrum Disorders, Participatory Research, Research Design, Research Methodology
Theresa Burgess; Stuart Rennie; Keymanthri Moodley – Research Ethics, 2024
South African research ethics committees (RECs) faced significant challenges during the COVID-19 pandemic. Research ethics committees needed to find a balance between careful consideration of scientific validity and ethical merit of protocols, and review with the urgency normally associated with public health emergency research. We aimed to…
Descriptors: Research Committees, Ethics, Foreign Countries, COVID-19