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Melissa Raspa; Angela Gwaltney; Carla Bann; Jana von Hehn; Timothy A. Benke; Eric D. Marsh; Sarika U. Peters; Amitha Ananth; Alan K. Percy; Jeffrey L. Neul – Journal of Autism and Developmental Disorders, 2025
Rett syndrome is a severe neurodevelopmental disorder that affects about 1 in 10,000 females. Clinical trials of disease modifying therapies are on the rise, but there are few psychometrically sound caregiver-reported outcome measures available to assess treatment benefit. We report on a new caregiver-reported outcome measure, the Rett Caregiver…
Descriptors: Neurodevelopmental Disorders, Genetic Disorders, Females, Test Validity
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Elodie Martin; David Trouilloud; Jessica Tallet – Journal of Motor Learning and Development, 2024
The principles of motor learning have been applied in neurological rehabilitation for years. The underlying assumption is that these principles that have been identified in research on healthy individuals would also apply to those with neurological disorders, making them highly relevant for rehabilitation. However, there is currently no tool…
Descriptors: Foreign Countries, Occupational Therapy, Allied Health Personnel, Psychomotor Skills