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Parents' Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study
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Hodgson, Anna R.; Grahame, Victoria; Garland, Deborah; Gaultier, Fiona; Lecouturier, Jan; Le Couteur, Ann – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Early intervention for autism spectrum disorder (ASD) tends to focus on enhancing social communication skills. We report data collected via focus group discussions as part of a feasibility and acceptability pilot randomized controlled trial (RCT) about a new parent group intervention to manage restricted and repetitive behaviours (RRB)…
Descriptors: Parent Attitudes, Early Intervention, Pervasive Developmental Disorders, Autism
End-of-Life Care for People with Intellectual Disabilities: Paid Carer Perspectives
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Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…
Descriptors: Caring, Mental Retardation, Focus Groups, Caregiver Attitudes