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Direct linkKasey E. Bedard; Annette K. Griffith; Delyla Ulm; Mary Strittman; Kelly Krukowski; Angeline Eaton; Amanda Rone; Teresa Cardon – Journal of Positive Behavior Interventions, 2025
PWS Smart-Start is a behavioral caregiver training program developed specifically for caregivers of children with Prader-Willi syndrome (PWS) ages 3 to 14. The purpose of the current study was to evaluate the acceptability and preliminary efficacy of the program. Thirty-four caregivers of children with PWS received the PWS Smart-Start training…
Descriptors: Caregiver Training, Early Adolescents, Genetic Disorders, Program Effectiveness
Zyga, Olena; Russ, Sandra W.; Dimitropoulos, Anastasia – American Journal on Intellectual and Developmental Disabilities, 2018
Research has shown that children with Prader-Willi syndrome (PWS) have social-cognitive challenges and decreased quality parent-child interactions. However, given the low prevalence rate, developing interventions for children with PWS is faced with the significant challenge of enrolling enough participants for local studies. To better understand…
Descriptors: Genetic Disorders, Intellectual Disability, Interpersonal Competence, Parent Child Relationship
