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Direct linkFomous, Cathy; Miller, Naomi – Mental Retardation and Developmental Disabilities Research Reviews, 2006
Expanded newborn screening programs and subsequent detection of rare genetic disorders challenge parents and their medical providers to learn about the treatment and management of these disorders. Many people seek medical information on the Internet but may encounter requests for registration or fees, or find that resources are out of date,…
Descriptors: Genetic Disorders, Genetics, Government Libraries, Library Role
