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Kasey E. Bedard; Annette K. Griffith; Delyla Ulm; Mary Strittman; Kelly Krukowski; Angeline Eaton; Amanda Rone; Teresa Cardon – Journal of Positive Behavior Interventions, 2025
PWS Smart-Start is a behavioral caregiver training program developed specifically for caregivers of children with Prader-Willi syndrome (PWS) ages 3 to 14. The purpose of the current study was to evaluate the acceptability and preliminary efficacy of the program. Thirty-four caregivers of children with PWS received the PWS Smart-Start training…
Descriptors: Caregiver Training, Early Adolescents, Genetic Disorders, Program Effectiveness
Zyga, Olena; Russ, Sandra W.; Dimitropoulos, Anastasia – American Journal on Intellectual and Developmental Disabilities, 2018
Research has shown that children with Prader-Willi syndrome (PWS) have social-cognitive challenges and decreased quality parent-child interactions. However, given the low prevalence rate, developing interventions for children with PWS is faced with the significant challenge of enrolling enough participants for local studies. To better understand…
Descriptors: Genetic Disorders, Intellectual Disability, Interpersonal Competence, Parent Child Relationship
Luque, John; Tyson, Dinorah Martinez; Lee, Ji-Hyun; Gwede, Clement; Vadaparampil, Susan; Noel-Thomas, Shalewa; Meade, Cathy – Journal of Community Psychology, 2010
The Tampa Bay Community Cancer Network (TBCCN) is one of 25 Community Network Programs funded by the National Cancer Institute's (NCI's) Center to Reduce Cancer Health Disparities with the objectives to create a collaborative infrastructure of academic and community based organizations and to develop effective and sustainable interventions to…
Descriptors: Network Analysis, Cancer, Social Networks, Community Health Services
Inverness Research, 2008
Inverness Research studied the American Museum of Natural History (AMNH) Seminars on Science program for eight years, from its inception in 1998 to 2006. This paper presents teacher survey ratings for "Genetics, Genomics, Genethics", along with profiles of three teachers who took the course. Course takers report on the annual follow-up…
Descriptors: Course Evaluation, Museums, Seminars, Online Courses